The Canary Report

Kindra Arnesen speaks out on lack of respirators for oil well blowout “clean up” crew

Posted on Jun 30, 2010 by Susie Collins in Blog, Environment, Susie Collins

Kindra Arnesen, whose husband was made ill during his work on “clean up” efforts in the gulf, speaks out about harsh realities in the impact zone.

On Monday I blogged about a timeline of health horrors caused by the BP oil well blow out. In that post, I told you about a commercial fisherman’s wife, Kindra Arnesen, who broke the silence about her husband’s deteriorating health since he worked on clean up efforts in the Gulf.

Above is a talk Kindra gave at the Gulf Emergency Summit in New Orleans on June 19.

Kindra Arnesen, a young mother of two 8 and 5 year-old children, and the wife of a commercial fisherman in Louisiana, became extremely concerned about the lack of progress of the relief operations of the BP oil disaster in the Gulf of Mexico. She had the opportunity to investigate on the spot by participating in a number of meetings with authorities, and in on-site “clean-up” visits. She vividly and powerfully describes, at the Gulf Emergency Summit in New Orleans, the harsh reality of what’s really going in the area – and the need to prepare for evacuation of populations.

You’ll be especially interested in Kindra’s explanation about why workers are not given respirators. From the transcript:

“I’m gonna go into the health issues for a moment, if you don’t mind. I sat through endless hours of meetings with BP’s safety officers. I sat through an hour and 45 minute meeting with the Coast Guard Safety Officer, both in the Homeland Incident Command Post, as well as a gentleman from OSHA.

“In order to obtain a respirator for our responders — now this isn’t just commercial fishermen — I’m talking about Coast Guard members, all responders, people off the street, everybody involved.

“Number 1: They have to fill out an OSHA questionnaire. Number 2: They have to have a physical evaluation by a medical professional.

“But, EPA is doing air monitoring. Everything’s OK. It’s great. Yeah, imagine that.

“At any rate, there is in fact some Act somewhere in OSHA’s law, that says that volunteers have a right to wear a volunteer respirator. But, as we all know, BP is taking over our Gulf. BP rules right now, our Gulf, I mean… Bottom line, that’s who’s in charge of the situation.

“They couldn’t even run their own company and they are in charge of this response! I’m totally appalled!

“They can’t wear a volunteer respirator because if they’re not properly trained… BP’s rules are, they have to be properly trained in order to wear a respirator. Now, BP said that they will provide the training and they will provide a respirator. But, everything’s OK! So, they don’t need to be trained and they don’t need a respirator. And as far as the right to wear volunteer respiration? Guess what? If you don’t follow BP’s rules, you don’t have a job. And that’s what they told me.”

Click here to read full transcript.

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Tags: Air, Chemicals, Environment, Environmental Illness, EPA, Pollution, Toxic, Video, Work

Danish report explores Multiple Chemical Sensitivity policy in 11 European countries

Posted on Jun 30, 2010 by Susie Collins in Blog, Guest Bloggers, Law, MCS, Policy

Here is the English translation of a Danish report on Multiple Chemical Sensitivity policy in 11 European countries.

By guestblogger Harry Clark, President, MCS Society of Australia, Inc.

Cover of Danish report translated by Harry Clark, et al.

The Danish Health Ministry recently released a report about measures being taken by 11 European countries to address Multiple Chemical Sensitivity (MCS). Please find attached an English translation of the document, entitled Measures Taken by European Countries for Multiple Chemical Sensitivity, which I have translated with the kind assistance of several people. I extend my thanks to Sandra, Monika, Mervi, Martine and Charlotte for their invaluable assistance with translations, corrections, proofing and suggestions. I also wish to thank Martine who brought the Danish report to my attention.

Please check Eva Caballe’s blog, No Fun,  and Mariajo Moya’s blog, Mi Estrella de Mar, for subsequent Spanish translations.

SUMMARY OF REPORT

In many countries around the world, there are fascinating and important developments occurring in the realm of MCS. Yet, much of this knowledge is unintentionally restrained behind veils of the different languages used. These veils that partition MCS knowledge and restrict its flow need to be actively pushed aside so that we can all freely share in the full and developing body of MCS materials. Translations, like the one in English presented here of the Danish Health Ministry’s report, are of great importance because they enable MCS knowledge to spread further afield, which in turn empowers all of us as we engage in the challenge of improving the lives of people who have MCS.

The Danish paper represents an important snapshot of current MCS thinking and activity in Denmark and 11 other European governments. It reports on a pioneering conversation between governments. It is not full of news or attitudes that are the absolute best for those of us with MCS, but there are plenty of threads of opportunity and hope. I suggest this report reflects conversations on MCS that are occurring within some European countries and also in some offices of the European Parliament. Clearly those who wish to dismiss MCS have lost some influence, otherwise this Danish report would not exist.

To briefly summarize the Danish report:

• Only two countries, Germany and Austria, recognize MCS as a physical disease on their ICD disease registers. In Germany this means a sick leave note and perhaps sick pay may be available, but confusingly they say that MCS is not explicitly recognized as a disease in Germany and that it is not recognised as an occupational disease there. To add to the confusion, in Austria a person disabled by MCS will likely be diagnosed as having a mental disorder in order for them to have the opportunity to gain a pension.

• Three countries– Finland, Sweden and Germany– recommend perfume and strong detergents be avoided in the public sphere; including for example hospitals, kindergartens, schools and after school care.

• Six countries– Finland, Luxemburg, Nederland, Sweden, Germany and Austria– follow the European Union Directive on labelling for cosmetics. Germany particularly mentioned that sensitising agents need to be listed on a products label. Britain labels according to other EU environmental legislation. Denmark says it labels all cosmetic products with declarations of their contents such that people with allergies can avoid products they might react to, but does not say what law or directive it follows.

• France, while not identifying MCS as a special strand of study, is setting up a number of systems and studies to obtain information on Electromagnetic Sensitivities and to collect records of people who suffer symptoms that appear to be allergy related but are not proven to be allergies. They are looking at the biochemical status of 20,000 children in a longitudinal study. Allergies and their prevention is a specific focus of the Environment and Health Plan for 2009-2010.

• The Västra Götalands region of Sweden put in place a region-wide Fragrance-Free Hospital policy in 2008 that covers 17 hospitals. Also, the Swedish EPA says that sustainable development requires the reduction of the inconvenience brought about by chemicals to people who are already hypersensitive. However they have suggested no measures to achieve this.

• The Federal Agency for the Environment in Germany generally recommends that those with MCS should not be socially excluded.

• Luxembourg’s environment ministry has a campaign to promote the use of organic laundry detergent and cleaning products and warns against adding fragrances that don’t aid the cleaning.

Harry Clark

President
MCS Society of Australia, Inc.
Email: MCS-Society-of-Australia@bigpond.net.au

Founder
MCS News Australia

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Tags: MCS, Multiple Chemical Sensitivity, Policy, Support, Work

A timeline of health horrors caused by the BP oil well blow out

Posted on Jun 28, 2010 by Susie Collins in Blog, Environment, MCS, Susie Collins, Worker's Rights

Clean up workers are already visiting their doctors with symptoms of Multiple Chemical Sensitivity.

A still from the BP oil well blow out live cam taken June 28.

Have you been as crazed as I’ve been watching the images of people without respirators working on the so-called “clean up” in the Gulf? We all knew it was only a matter of time before cases of Multiple Chemical Sensitivity were reported. Take a look at the timeline: reports of MCS started fairly soon after the blow out.

5/03: MSNBC reports that the oil spill has little impact on human health: gunk spreading across Gulf a disaster for ecosystem, but not the public. Yeah, right.

5/23: Gina Solomon at the Natural Resources Defense Council Staff Blog, called Switchboard, reports Oil Spill Clean-Up Workers Getting Sick.

5/27: The Washington Post reports that illnesses among workers highlight concerns about health risks of oil cleanup.

6/03: CNN reports on a gutsy fisherman’s wife who breaks the silence about her husband’s deteriorating health since he worked on clean up efforts in the Gulf. “After attending a lecture by Rikki Ott [sic], a toxicologist who’s worked with families affected by the Exxon Valdez oil spill in Alaska, [fisherman's wife Kindra] Arnesen decided to organize other wives to ask questions about the safety of working near the oil.” (See next entry for more info on Riki Ott.) Here’s the CNN vid about Kindra and her husband:

Here’s a couple of asides from our Timeline– Here’s Riki Ott in the documentary film Black Wave about the Exxon Valdez spill:

Here’s more from Riki Ott on 20 years after the Exxon Valdez spill:

Back to our current disaster:

6/03: The Huffington Post reports Gulf Oil Spill Sickness: Cleanup Workers Experience Health Problems, Complain Of Flulike Symptoms.

6/07: I contacted Alison Johnson, author of Amputated Lives: Coping with Chemical Sensitivity, a book about the development of chemical sensitivity in Exxon Valdez cleanup workers, Gulf War veterans, 9/11 First Responders, and FEMA trailer residents. I spoke to Alison on the phone and she expressed concern for the people in the Gulf region that had lived through the toxic soup of hurricane Katrina, including the toxic FEMA trailers, and were now experiencing the fumes from this BP disaster. Given that MCS can be initiated by repeated exposures to toxic chemicals, people in the region should take note of Alison’s concern.

6/08: Ariel Schwartz at Fast Company warns clean up crews to Read This Before You Volunteer to Clean Up the BP Oil Disaster.

Merle Savage has a wheezy, guttural smoker’s cough. But the 71-year-old former Alaska resident and author of Silence in the Sound never smoked a day in her life. She did, however, spend four months as a general foreman during the Exxon Valdez oil spill recovery project in 1989. And she has a message for anyone working at the BP oil disaster sites: “You’ve got to use your common sense. Breathing crude oil is toxic.”

6/11: The Raw Story reports that a human rights group says BP is discouraging crews from using respirators. “BP’s logic seems to be that if the oil cleanup doesn’t look dangerous then it must not be. The oil company has told workers not to wear respirators because it’s bad for public relations, according to one human rights group.” [Emphasis added.]

AND HERE’S THE REPORT WE KNEW WAS COMING:

6/15: Janet Kwak at WOAI TV reports that a mysterious illness plagues Gulf oil disaster workers. Clean up workers are visiting their doctors with symptoms of Toxicant-Induced Loss of Tolerance or TILT, which is another name for Multiple Chemical Sensitivity.

“What makes it challenging is that patients show up with non-specific symptoms. Headaches, fatigue, problems with memory and concentration, upset stomach,” lists Dr. Claudia Miller at UT Health Science Center.

The illness is called “TILT,” or Toxicant-Induced Loss of Tolerance. Patients lose tolerance to household products, medication, or even food after being exposed to chemicals, like burning oil, toxic fumes, or dispersants from the spill.

“Things like diesel fuel, exposure to fragrances, cleaning agents that never bothered them before suddenly bother them,” adds Dr. Miller.

6/18: Politics AP reports BP’s records on ill workers tell only part of the story.

This is about the time I discover the Louisiana Environmental Action Network report on the Health Impacts Associated with Dispersants and Louisiana Sweet Crude. I felt from the beginning of the disaster that the dispersant Corexit was going to cause as much if not more damage to people, animals and the environment as the crude oil. Take a look at the lists on that page for health impacts of both the dispersant and the oil.

And yesterday I found a report in the New York Times about how Cleanup Hiring Feeds Frustration in Fishing Town. Don’t you just love how BP has managed to destroy the environment, livelihoods and probably the health of most workers and many others in the affected regions while at the same time remaining the main employer with “clean up” efforts?

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Tags: Air, Environment, EPA, Pollution, Products, Toxic, Video, Work

US Centers for Disease Control and Prevention issues indoor air quality policy for all CDC offices nationwide

Posted on Apr 07, 2010 by Susie Collins in Blog, Government Regulation, MCS, Policy, Susie Collins, Worker's Rights

This is arguably the strongest and most important toxic chemical-free and fragrance-free policy in existence for the workplace.

CDC′s Roybal campus in Atlanta, GA.

The US Centers for Disease Control and Prevention, a federal agency under the Department of Health and Human Services, recently issued a policy on indoor air quality that will affect all CDC offices (owned, leased and rented) and more than 15,000 employees nationwide. Among a host of indoor air quality standards, the policy includes specific guidelines restricting the use of fragrance in cleaning and personal care products.

Housekeeping Guidelines

CDC will ensure that products used in the workplace, such as soaps, cleaning products, paints, etc. are safe and odor-free or emit low levels of volatile organic compounds (VOCs) to the fullest extent feasible. Only green cleaning products shall be specified and used within CDC facilities and leased spaces unless otherwise approved by the Office of Health and Safety. [...]

Non-Permissible Products

Scented or fragranced products are prohibited at all times in all interior space owned, rented, or leased by CDC. This includes the use of:
• Incense, candles, or reed diffusers
• Fragrance-emitting devices of any kind
• Wall-mounted devices, similar to fragrance-emitting devices, that operate automatically or by pushing a button to dispense deodorizers or disinfectants
• Potpourri
• Plug-in or spray air fresheners
• Urinal or toilet blocks
• Other fragranced deodorizer/re-odorizer products

Personal care products (e.g. colognes, perfumes, essential oils, scented skin and hair products) should not be applied at or near actual workstations, restrooms, or anywhere in CDC owned or leased buildings.

In addition, CDC encourages employees to be as fragrance-free as possible when they arrive in the workplace. Fragrance is not appropriate for a professional work environment, and the use of some products with fragrance may be detrimental to the health of workers with chemical sensitivities, allergies, asthma, and chronic headaches/migraines.

Employees should avoid using scented detergents and fabric softeners on clothes worn to the office. Many fragrance-free personal care and laundry products are easily available and provide safer alternatives.

Further, the policy extends to enforcement. Within the document itself is clearly stated the process by which an employee may file a report about air quality problems through a questionnaire, and further still, who is responsible for overseeing the investigation:

Building occupants who experience irritation or symptoms that may be related to the quality of indoor air should notify their supervisors, and the OHS or local Safety Officer to initiate a complaint. BFO must also be contacted upon initiation of a complaint, to identify and/or review any potential structural, maintenance, or heating, ventilating or air conditioning (HVAC) issues. Building occupants must also complete the Indoor Air Quality Questionnaire (see Attachment B) in order to properly document the complaint. Each IEQ complaint poses a unique set of circumstances that will determine the investigative procedures used to resolve each IEQ concerns.

Office of Health and Safety/Designated Safety Officer Administers the Indoor Environmental Quality Program and serves as the primary coordinator and investigator for reported incidents involving IEQ hazards or conditions; educates CDC supervisors and workers; develops report findings and recommendations for corrective action; and reviews and updates to meet future needs and regulatory changes.

You’ll also be happy to see that there is a section on pest control. Although it’s not perfect, it’s far safer than the hazards many workers endure with ubiquitous application of hazardous pesticides, usually performed without notice: “Pest management, for both buildings and lawn care, will emphasize non-chemical management strategies whenever practical, and the least-toxic chemical controls when pesticides are needed. Integrated Pest Management practices must be utilized.”

Coming from the CDC, this is arguably the most important toxic chemical- and fragrance-free policy in existence for the workplace. In the words of former CDC director Dr. Julie Gerberding, the agency is charged with confronting “the challenges of 21st-century health threats.” It looks like the current CDC director, Dr. Thomas R. Frieden, believes this responsibility covers not only the general public, but CDC’s own employees and workplaces as well.

Creating nontoxic work environments is not just good for employees’ health, it’s good for the bottom line, too. Workers who are not being slowly poisoned by toxic chemicals on the job can think clearer, work more efficiently and be more productive. Employees who suffer toxic chemical sensitivity, asthma and other respiratory ailments will take less sick days. People who are prone to developing health problems triggered by toxic chemicals will be safer; in fact, everyone who works in CDC buildings will now be safer.

For those of you with Multiple Chemical Sensitivity who are currently battling it out with your employer over hazardous chemicals in your work environment, in addition to discussing your rights to safer accommodations under the Americans with Disabilities Act, you might want to print out this new CDC policy and give copies to your boss, your CEO, and your human resources director. Explain to them that the experts at CDC understand that indoor air quality is greatly compromised by a host of toxic chemicals, including those from cleaning products used by maintenance personnel and personal care products used by employees. Tell them that this recent CDC policy is indicative of the way trends are going, and any company getting on board now will be spared future costs caused by condoning an unsafe environment for employees.

This policy is incredibly good news– use the clout and expertise of this CDC policy to strengthen your arguments for a toxic chemical- and fragrance-free work environment.

Here’s the pdf of the policy.

Here’s the pdf of the questionnaire to be used when CDC employees file a complaint about air quality.

Thanks to Harry Clark for obtaining these documents from CDC and for sharing them so freely!

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Tags: Air, Asthma, Chemicals, Environmental Health, Fragrance, Indoor Pollution, MCS, Multiple Chemical Sensitivity, Perfume, Personal Care, Policy, Pollution, Products, Sick Building, Toxic, Work

Open tabs

Posted on Mar 21, 2010 by Susie Collins in Blog, Media/Videos, News, Susie Collins

Reports and pages I’ve been exploring this weekend:

ABC reports the Military Admits Fault in Water Contamination: Soldiers at Camp Lejeune in the 1980s were exposed to chemicals in tap water.

For an inside look at the Camp Lejeune horror story, visit this website made by former residents called Camp Lejeune Toxic Water: The Few The Proud, The Forgotten.

I’m annoyed with the Environmental Protection Agency’s Evaluation of Pet Spot-On Products: Analysis and Mitigation Plan, just released. No mention of nontoxic alternatives, but I guess that’s not the topic.

The EPA also urges families to lock up household chemicals and pesticides. No mention about eliminating toxic chemicals from the home in the first place to remove the danger completely. Listen to this: “Leading causes of poisoning include cosmetics such as perfume and nail polish, deodorant and soap, household cleaning products and medications.” Did you know perfume, nail polish, deodorant and soap are LEADING causes of child poisoning? WAKE UP, PEOPLE! Get those toxic chemicals out of your house! Here’s the EPA’s page on Prevent Poisonings in Your Home; again no mention about elimination or alternatives.

I love Paul Tukey‘s blog SafeLawns.Blog. Paul is the founder of SafeLawns.org, a 501(c)(3) nonprofit foundation. He’s also executive producer of the award-winning documentary, A Chemical Reaction, which can be found at www.pfzmedia.com; the movie chronicles the origin of the anti-pesticide movement sweeping across Canada and into the United States.

Shine reports on the woman who was awarded $100K because her employer did not provide her proper accommodations under the Americans with Disabilities Act when her co-workers’ perfume and the office air fresheners made her ill. I’m disgusted at the media for the way this story’s been reported: I’ve read at least 50 reports on this story and not one has mentioned that perfume and air fresheners contain toxic chemicals and that it was the toxic chemicals that made the woman ill, not the “stink” or “chemical-smells.” I think this report here at The Ohio Employer’s Law Blog has the most interesting perspective I’ve read yet about the case:

The focus in ADA cases has shifted from the legal argument of whether an employee’s medical condition rises the level of an ADA-protected disability, to the factual issue of whether the employer reasonably accommodated that disability.

Dr. Andrew Weil answers a question about the use of clay treatment for healing fibromyalgia. Fibromyalgia is in the same group of illnesses as Multiple Chemical Sensitivity, Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, and Post-Traumatic Stress Disorder.

I was delighted to discover Annie Leonard’s blog The Story of Stuff Project. If you haven’t seen her Story of Stuff videos, you must!

Harrison Medical Center, Washington state, has a scent-free policy.

Nirvana Safe Haven has the most comprehensive list I have ever seen on scent-free organizations and policy. Good resources there for anyone trying to implement scent-free policy in churches, schools, public venues and more.

And the New York Times reports the Department of Agriculture said it would begin enforcing rules requiring the spot testing of organically grown foods for traces of pesticides, after an auditor exposed major gaps in federal oversight of the organic food industry.

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Tags: Chemicals, Children's Health, Environment, Environmental Health, Fragrance, Garden, Home, Indoor Pollution, Perfume, Policy, Toxic, Video, Work

$100K awarded to woman with chemical sensitivity denied proper accommodations at work

Posted on Mar 10, 2010 by Susie Collins in Blog, Disability Rights, MCS, Susie Collins, Worker's Rights

Woman with chemical sensitivity awarded $100K for being denied proper accommodations at work; her coworker’s perfume made it difficult for her to breathe.

Modern perfume contains known toxic chemicals that can cause serious cognitive and respiratory problems in people with chemical sensitivity.

On Point reports a Detroit city planner with an allergy to perfume is savoring the sweet smell of legal success after the city agreed to pay her $100,000 and be more sensitive to the chemically sensitive.

The agreement -– obtained by On Point through a public records act request — settled Susan McBride’s lawsuit under the Americans With Disabilities Act which alleged the City of Detroit failed to reasonably accommodate her allergy after she complained that a co-worker’s perfume made it difficult for her to breathe.

Some critics attacked McBride for being overly sensitive and abusing the court system. But many workplaces are now perfume-free and a judge in November 2008 denied the city’s motion to dismiss, ruling McBride could proceed with a disability claim “based on the major life activity of breathing.”

As part of the settlement, which the parties signed last month, the city will post a notice on bulletin boards in its offices announcing that “Our goal is to be sensitive to employees with perfume and chemical sensitivities”

Let’s hope it sets precedent for future cases. If you have Multiple Chemical Sensitivity and are having trouble with your employer giving you proper accommodations, you might like to share the agreement with them. This is an access issue, the same as any other disability protected under the ADA.

Photo credit

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Tags: Air, Chemicals, Environmental Illness, Fragrance, Law, MCS, Multiple Chemical Sensitivity, Perfume, Personal Care, Policy, Sick Building, Stink, Toxic, Work

The risk of developing Multiple Chemical Sensitivity from exposure to photocopiers and laser printers

Posted on Feb 13, 2010 by Susie Collins in Blog, Guest Bloggers, MCS, Worker's Rights

Some persons suffering from Multiple Chemical Sensitivity may have developed their conditions or worsened them due to exposures to the toxic chemicals given off by photocopiers and laser printers in their office jobs.

By guestblogger M.R.E.

The following is information for the readers of The Canary Report concerning potential risks of exposure to photocopiers and laser printers. I have suffered a devastating respiratory condition from exposure to these types of machines, and so I am trying to raise awareness about this health hazard to hopefully receive feedback and get in touch with other persons who suffer the same.

Due to exposure to photocopiers and laser printers, I have suffered a devastating respiratory condition which produces in an extreme degree: difficulty for breathing, chest pain and oppression, fatigue, cough, mucosal dryness, inability to sneeze and plenty of disturbances in the throat, nose, mouth, eyes, skin, stomach and other systems plus an extreme, lasting intolerance to all chemicals in the air. After a lot of troubles it was diagnosed in two university hospitals as non-specific bronchial hyper-reactivity and Multiple Chemical Sensitivity (MCS). The syndrome was caused by the irritant vapors released by a photocopier and a laser printer in my jobs and this appears very obvious from the full details of my story, too long for this page. Although my illness was initiated within 24 hours of intense exposure to these gases, it has not been officially recognized as occupational for any purpose. As many other sufferers with MCS, I have lived a nightmare of sickness and social neglect, but thanks to my family, who financially and psychologically supported me, I did not fall into marginality and eventual tragedy.

From my own experience of nearly three decades with this problem I see that the following points should be carefully taken into account:

[...]

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Tags: Air, Asthma, Chemicals, Environmental Illness, Indoor Pollution, MCS, Multiple Chemical Sensitivity, Products, Research, Sick Building, Toxic, Work

More blogging canaries

Posted on Feb 09, 2010 by Susie Collins in Blog, MCS, Susie Collins

I’ve discovered a couple more blogs by canaries!

On her blog After Gadget, Sharon blogs about life after the loss of her beloved service dog Gadget. After Gadget is a new blog with only a few posts, but if you get hooked like I did, you’ll read every page and then subscribe so you don’t miss the next entry!

Along with Multiple Chemical Sensitivity, Sharon also suffers myalgic encephalopathy (ME), also called chronic fatigue syndrome (CFS) or chronic fatigue immune dysfunction syndrome (CFIDS). Her bio is here. An excerpt from the page about how MCS affects her life:

In my case, the low-level, constant exposure to the sick building was the initial trigger. If I had recognized what was happening and taken steps to lower my toxic burden, I might have regained my health and not become disabled. Instead, I moved into an apartment with freshly painted walls, bought cheap pine furniture (which is usually imbued with fungicides, insecticides, and formaldehyde), and then painted the new furniture. My symptoms increased in severity and number, and still I didn’t see the connection. Being so ill, I was forced to stay home from work and from teaching; I didn’t know this was the nail in the coffin of my health. The ancient gas stove and furnace in my kitchen and living room were leaking. As a result, I suffered several months of low-level, chronic carbon dioxide poisoning. By the time I found a doctor who diagnosed me with MCS and told me to shut off my gas, I’d developed severe MCS and CFIDS/ME.

Here’s Gadget delivering a message for Sharon to someone in another part of the house:

Because Sharon has speech disabilities, when she lost Gadget, she also lost this way of communicating with others in her home, which increased her sense of isolation and loss. But she’s adapting to life after Gadget, and while her heart still mourns for him, she’s also looking forward to bringing home a puppy in the very near future.

~~~

Faith at An Ocean of Joy gave The Canary Report two shout outs, so nice of her! First post here and second here. In the more recent, she explores biochemist Martin Pall’s MCS research. Faith has mast cell problems, and through process of elimination, has recently come to the conclusion that she has Multiple Chemical Sensitivity. I’m not familiar with mast cell problems, so I welcome the education I’m getting from her blog on that topic.

Pall explains how mast cells can be triggered by the cycle in the context of MCS, which may be of interest to anyone with Mast Cell Activation Disorder. In addition, he lists the 6 genetic polymorphisms associated with a susceptibility to MCS, including the UGT1A1 polymorphism associated with the heretofor ‘benign’ Gilbert’s Syndrome.

The way out of the cycle, according to Pall, is to reduce nitric oxide levels in the body, and he presents an experimental treatment protocol designed to do so.

Thanks for the education, Faith!

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Tags: Children's Health, Environment, Environmental Illness, MCS, Multiple Chemical Sensitivity, Research, Sick Building, Toxic, Work

Multiple Chemical Sensitivity associations in Spain meet with Ministry of Health officials

Posted on Feb 05, 2010 by Susie Collins in Blog, Disability Rights, Eva Caballé, Government Regulation, Guest Bloggers, MCS, Social Justice

Eva Caballé reports on the meeting between Multiple Chemical Sensitivity associations and Ministry of Health officals in Spain, Feb. 4, 2010

Translated from Spanish by Eva Caballé

On February 4th 2010 at 12:00h has been held the meeting with Ministry of Health to state the situation of Multiple Chemical Sensitivity sufferers in Spain.

Mr José Martínez Olmos, Secretary General of the Ministry of Health, Mr Alberto Infante Campos, General Director of Professional Planning, Cohesion of SNS and High Inspection and Mr Francisco Valero Bonilla have attended to the meeting representing the Ministry of Health. One person by almost each MCS association has attended to the meeting and also Jaume Cortés, lawyer of Colectivo Ronda, and Dr. Pablo Arnold, immunologist specialized in MCS.

• ACAF: Cristina Montané
• AFCISQUIM: María Roldán
• Alas de Mariposa- SQM: Tránsito Rodríguez
• ALTEA – SQM: Cristobalina Bejarano
• APQUIRA: Mª Carmen Gómez de Bonilla
• AQUA: Mario Arias
• ASQUIFYDE: Francisca Gutiérrez
• AVASFASEM-AVASQ: Francisca García
• ENA: Laura Domínguez
• MERCURIADOS: Mª Carmen Miravete
• Plataforma Estatal Contra la Contaminación Ambiental: Minerva Palomar
• PLATAFORMA PARA LA FM ,SFC, SQM, reivindicación de derechos, Asociación Nacional: Elena Navarro

A petitions document done by MCS associations under David Palma coordination has been submitted. This document has been signed by:

• ABAF: Margarita Pascual
• ACAF: Maite Ribera
• AFCISQUIM: María Roldán
• Alas de Mariposa- SQM: Irene Escudero
• ALTEA – SQM: Cristobalina Bejarano
• APQUIRA: Mª Carmen Gómez de Bonilla
• AQUA: Mario Arias
• ASQUIFYDE: Francisca Gutiérrez
• AVASFASEM-AVASQ: Francisca García
• ENA: Rosa de Gabriel
• MERCURIADOS: Servando Pérez
• Plataforma Estatal Contra la Contaminación Ambiental: Minerva Palomar
• PLATAFORMA PARA LA FM ,SFC, SQM, reivindicación de derechos, Asociación Nacional: Elena Navarro
• Eva Caballé

Also a copy of Desaparecida: Una vida rota por la Sensibilidad Química Múltiple (Missing: A life broken by Multiple Chemical Sensitivities) has been hand delivered on behalf of Eva Caballé, who couldn’t attend to the meeting, as an example of what MCS sufferers have to go through in Spain.

The meeting with Ministry of Health has meant an agreement on minimum standards by the Ministry, but a big hope for all MCS sufferers.

Representatives of Ministry of Health have committed to contact MCS associations within 2 weeks to jointly agree on experts to form a Scientific Committee to create a document of consensus on the MCS. They have stated that this is the first step to make possible the inclusion of the MCS in ICD-10, i.e. its official recognition as disease in Spain. They have demonstrated that later there would be necessary to start creating the protocols.

All people who have been part of this process are thrilled by the result of the meeting, because doors have opened us to obtain the recognition of the Multiple Chemical Sensitivity in Spain and to achieve that MCS sufferers have the same rights as the other chronically ill people.

Link

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Tags: Children's Health, Environmental Health, Environmental Illness, Law, MCS, Multiple Chemical Sensitivity, Policy, Research, Work

Professor of chemical engineering urges students to go fragrance-free

Posted on Feb 03, 2010 by Susie Collins in Blog, MCS, Susie Collins

Chemical engineering professor at the University of New Hampshire encourages students to “be considerate to human canaries and help them to enjoy life to the fullest.”

Ihab Farag, professor of chemical engineering at the University of New Hampshire and member of our Canary Report community, wrote a letter to the editor at his school’s student paper to raise awareness about chemical sensitivity. And they published it! I’m a huge supporter of letters to the editor. Bravo, Ihab!

Many of us are familiar with canaries, the beautiful, colorful birds that tend to sing most of the time. Canaries also saved many human lives in coalmines. This is because canaries are much more sensitive to toxic gases than humans. Miners would take canaries with them in the coalmine. If the canary stopped singing and fell (or died), the miners knew to leave the coal mine quickly to safety.

There are individuals who have developed a very strong sensitivity to many common chemicals. These people can be very negatively affected and irritated by fumes, chemical cleaners, disinfectants, cigarette/cigar smoke, engine exhaust, solvents, etc. These people are often called “Human Canaries” of the modern world, because of the chemical sensitivity similarity to that of Canaries. Human Canaries of the 21st century tend to be very strongly irritated by everyday chemicals like perfumes, hair products, shampoos, shower gels, after shave lotions, antiperspirants, deodorants, hand sanitizers, chap sticks, finger nail polish, etc. Human canaries look the same as other people, and when you see one you probably will not recognize he or she is a human canary until an offensive toxic chemical triggers his or her sensitivity.

Please be considerate to human canaries and help them to enjoy life to the fullest. One way you can help the human canary and at the same time lower your exposure to undesirable chemicals, is to go fragrance-free: avoiding perfumes, and fragranced personal care products.

Ihab Farag
Professor, Chemical Engineering Department

Link to Dr. Farag’s home page at the University of New Hampshire.

Canary photo credit

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Tags: Chemicals, Children's Health, Fragrance, Health, Healthy Living, Indoor Pollution, MCS, Multiple Chemical Sensitivity, Perfume, Products, Sick Building, Toxic, Work

Short film: The People’s Grocery

Posted on Jan 29, 2010 by Susie Collins in Blog, Food, Media/Videos, Organic Gardening, Susie Collins

Food justice: The People’s Grocery in West Oakland is an inspiration to communities everywhere about the importance of a healthy diet and about knowing where your food comes from. Director of the project Brahm Ahmadi is a hero!

In West Oakland, California, where liquor stores have replaced markets, People’s Grocery is creating a healthy alternative, offering access to organic produce. Through urban gardens and local farms, People’s Grocery supports a culture based on connection to the land, sustainable agricultural practices, and regenerating community.

Brahm Ahmadi is the co-founder and executive director of People’s Grocery. He has a B.A. in Sociology from the University of California and is an MBA candidate at the Presidio School of Management. Brahm combines social enterprise, cooperative economics, urban agriculture, public education and youth development to build healthy and stable inner city communities. He is also Executive Director of the North Oakland Land Trust, which preserves properties in North Oakland for the exclusive purpose of community gardening.

Link (A great site with oodles of online films to watch!)

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Tags: Children's Health, Environmental Health, Food, Healthy Living, Organic, Video, Work