October 2011-- During the next six months, The Canary Report will be dedicated solely to me sharing my experiences while on the Gupta Amygdala Retraining program for MCS. If you'd like to be notified by email when blog entries are made, please subscribe in the right hand column below. During the entire six months, this blog will remain online but Our Canary Report network and forum will be offline and inaccessible to our members. Thank you for all your support! Aloha, Susie
 

Who knew that only six days into Ashok Gupta’s Multiple Chemical Sensitivity recovery program, I’d be putting the treatment to the test, up close and personal with a brush fire!

 

Just six days into Ashok Gupta's MCS recovery program, there was a brush fire less than a mile from my home. Had I not already learned the main amygdala retraining technique, there is no doubt that the smoke exposure would have initiated MCS symptoms. Instead, I was Gupta Girl in action! This photo was a blast to catch.

This post is part of a series about my experience doing Ashok Gupta’s “Advanced Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivity Recovery Programme,” which I started on September 30 and will last for at least six months.

On Oct. 6, I was ready to start Session 6 of Ashok Gupta’s Multiple Chemical Sensitivity recovery program, but first I wanted to review a concept already covered in a previous session: identifying patterns associated with my chemical sensitivity symptoms. This had proved challenging; I found it difficult to identify patterns that were so hard wired into me that I saw them as natural mechanisms rather than conditioning from the illness. The examples on the worksheet Gupta provides were all geared toward symptoms associated with Chronic Fatigue Syndrome and I couldn’t relate to any of it. So before starting Session 6, I sat down and focused on this task, determined to find my patterns before moving on to the next lesson.

The smoke got very thick very fast, sweeping through our gardens and house.

Suddenly, out of the blue, as I was sitting there trying to figure out my patterns, I got a whiff of smoke on the air—and in that instant of one breath, my whole body went into a state of alarm: ALERT! SMOKE! DANGER! My mind lurched, my heart raced, and I suddenly felt unsafe. In that moment, I learned firsthand about a main pattern: breathing something threatening causes an instant alarm in every part of my body; even before I have time to think or analyze the source of the problem, I feel unsafe. Bingo! A pattern.

I immediately started doing the main amygdala retraining technique using my brain, body and voice, just as Gupta taught me only two days prior. The smoke was getting really bad and I heard sirens in the distance, which played into my own internal alarm. My husband dashed off to find the source of the smoke, but in that moment, I chose to focus on the retraining technique rather than the fire. I did the technique three times in a row and the alarm inside me subsided. I experienced no MCS symptoms!

Meanwhile, my husband had discovered the smoke was coming from a brush fire less than a mile from our home. We then decided it was best to get out of the smoke so we grabbed some food and water and jumped in the car. I grabbed my camera on the way out the door.

What happened over the next hour was astonishing in regard to my chemical sensitivity. Had I not already learned the main amygdala retraining technique, there is no doubt that the smoke exposure would have initiated MCS symptoms. For years I’ve had problems breathing particulate matter. Exposure to yard waste fires, emissions from the island’s active volcano (called vog), or even heavy dust on the air can cause eye irritation, coughing and wheezing. Also, an exposure like that can make my chemical sensitivities to go into hyper drive. But none of that happened. No eye irritation, no coughing, no wheezing (and later, no ultra sensitivity to chemical exposures). In fact, I felt so good after doing the technique, that I wanted to get in the car and go get a closer look at the fire to see what was happening!

This is the view we had from up the slope looking down at all the excitement. A few minutes after we got to this vantage point, I realized we were standing in a just-planted corn field, probably recently sprayed with pesticides. I did a quick retraining technique just in case and then turned my attention back to taking photos. Our home is about a half mile to the left, right in the path of all that smoke.

We took a road going straight up the mountain behind our village to get out of the smoke and had a good vantage point to watch the fire. I had fun taking a lot of photos. Later, we drove down closer to where they were fighting the fire, and I had a super opportunity to photograph the helicopter as it brought water up from the ocean and dumped it on the flames! It was so exciting! (That’s the large photo at top of post.)

But even more exciting was that even though I was exposed to the smoke and several chemicals that previously would have gotten me very sick, I flew through that hour feeling on top of the world because I’d used Gupta’s amygdala retraining technique at the first sign of a pattern, which short circuited any MCS symptoms before they even started! (Remember that even though this retraining is happening in the brain, Gupta’s hypothesis does NOT hold that MCS is a psychological disorder. Gupta states emphatically that “MCS is a real physical disorder with real physical symptoms, and is not psychological in nature.”)

Here’s a list of a few things to which I was exposed during my fire adventure:

  • Heavy smoke from the brush fire.
  • Diesel exhaust.
  • Air freshener from a cop’s car that parked right next to me when I was photographing the helicopter.
  • Laundry products on a neighbor’s clothing. I actually hugged him without any problem at all.
  • The mail, which we picked up at the post office on the way home and included one package with new books and one package with new clothing, all of which I opened up and handled right away in the car before we got home.
  • Creosote on a wooden bridge when we took a back road home.

Previously, any one of those exposures would have made me feel ill. But I didn’t have a single MCS symptom!

I need to say here that not everyone with MCS will achieve these same quick results from the amygdala retraining technique. I’ve talked to people who say results from Gupta’s program happened very fast for them, too, but I’ve seen testimonials where people say it took six months or a year or more to see symptoms abate. Some people aren’t helped at all, although it’s been difficult for me to tell if they did everything as instructed for a full six months. But even with that possible variable, since no two cases of MCS are alike, it only makes sense that each person will have a different experience with the program.

If you decide to try this treatment, I think you should take Gupta’s advice and do it at your own pace, no rushing! Don’t worry about how fast it will work for you, just do everything Gupta teaches you at your own pace and keep at it for the full six months as he advises. Even though I am already seeing improvement in my chemical sensitivity, I still have tons of work to do and have fully committed to giving it my all for at least six months.

By the way, I slept soundly that night after the fire, no insomnia and none of the “buzzing” in my body that usually happens after a day of chemical exposures. I woke the next morning refreshed with no MCS “hangover,” which meant no time spent in a recovery phase of hours or days or weeks. Now that I had a full experiential understanding of a main pattern, I was now ready to do Session 6!

Gupta Girl

Disclaimer

 

The online exhibit, which also will be shown at the ME and Fibromyalgia International Conference in Ireland this October, is designed to raise awareness about the hidden suffering caused by severe Myalgic Encephalopathy and Multiple Chemical Sensitivity.

Eva Caballé

Greg Crowhurst, a nurse in Ireland who runs Stonebird, a blog about Myalgic Encephalopathy, announces the launch of Stonebird’s online 2011 Autumn Art Exhibition designed to raise awareness of the hidden suffering of severe ME and Multiple Chemical Sensitivity. The exhibit features works by Crowhurst and his wife Linda, and also Eva Caballé, who blogs at No Fun and is a contributor at the Canary Report. She also is the author of the book Missing: A life broken by Multiple Chemical Sensitivity. 

A sampling of Eva’s contributions to Stonebird’s art exhibit:

Metamorphosis inside MCS

By Eva Caballé

During our lives we suffer several metamorphoses, some are painful, others are positive, chosen or not. The experience, the life itself, makes us change and evolve. My story is not different, although my most radical metamorphosis was when I fell ill with Multiple Chemical Sensitivity. And surprisingly, when I thought that my life couldn’t be more foreseeable and monotonous, from the prison that my house has become, another metamorphosis started, this time deeper and visceral. This time my metamorphosis was chosen.

The need to communicate, to let the world know that I’m still alive, to cry out for my own rights and the rights of millions of people who suffer MCS in the whole world, led me to write. The extremely reserved person that I used to be has disappeared, in order to be able to tell my story to the world, as I dig into the deepest places of my being. It’s my metamorphosis inside the metamorphosis of living with MCS.

The exhibit also will be on display at the ME and Fibromyalgia International Conference in Ireland on Oct 9th, 2011, hosted by the Academy of Nutritional Medicine (AONM) and the Midlands Fibromyalgia Group.

Eva Caballé is an economist from Barcelona, Spain, author of the book Desaparecida: Una vida rota por la Sensibilidad Química Múltiple (Missing: A life broken by Multiple Chemical Sensitivity) published in Spanish by El Viejo Topo, Barcelona, Spain, 2009. She authors NO FUN, a Spanish blog with an English section about Multiple Chemical Sensitivity, Chronic Fatigue Syndrome and Fibromyalgia, with information and advice for people who are sick or who want to live a healthier life free of toxics. She is a regular contributor at The Canary Report and at the art magazine Delirio (Delirium).

 

The photographer Thilde Jensen examines people with Multiple Chemical Sensitivity.

The New York Times publishes Thilde Jensen’s photo essay on Multiple Chemical Sensitivity entitled Canaries. I wept to see such suffering.

Thilde Jensen in her video about her recovery from MCS.

Jensen herself suffered from MCS and Electromagnetic Sensitivity for years and recently completed a neural retraining program, which Jensen says has led to her recovery. On the last slide of the photo essay, she says:

Through a recent experimental neural retraining based on advances in stroke rehabilitation, I am again able to function in the “real world” without a respirator. I have often wished and prayed that I would one day be able to tell this story with the knowledge of an insider but without the restriction of illness. I am now at that point.

Here’s her video about the therapy and her recovery:

I’m really happy to share this story because Jensen’s work is affecting change on two fronts. One, the photo essay in the New York Times is bringing our plight to a lot of people who might not otherwise know about Multiple Chemical Sensitivity (or may have preconceived ideas or misunderstandings about the illness), and two, Jensen’s story of recovery through an experimental neural therapy is an inspiration to everyone with MCS. Brava, Thilde! ~Susie

 

Call for photos for project entitled “Multiple Chemical Sensitivity Uncovered.”

By contributor Eva Caballé, Spain.

Loli Vicente, a Spanish woman with Multiple Chemical Sensitivity, whose photo has inspired the collage project “Multiple Chemical Sensitivity Uncovered." ©2010 Loli Vicente. Photo used with permission.

 

Last month, Loli Vicente, a Spanish woman with Multiple Chemical Sensitivity, shared an inspiring photo on Facebook. When I saw her picture (above), I had the idea to make a collage with pictures of people with MCS to post on NO FUN, because lately my blog is having a lot of visits (more than 3,000 the day that I was interviewed at national radio RNE or the day that MCS was featured on popular TV show in Spain) and many of the readers aren’t people with MCS. I thought that it would be a great opportunity to show to the society that there are a lot of people living with MCS and nobody will manage to silence us. I proposed this idea on Facebook and it was well received.

I have named the project “Multiple Chemical Sensitivity Uncovered.” NO FUN, my window to the outside world, shows people with MCS from all around the world, so we can illustrate that there are a lot of people living with MCS.

If you suffer MCS and you want to join this project, you can send your photo (with your country and your name or pseudonym), before September 30, to this email account: fotos.sqm@hotmail.es (this account has been created exclusively for receiving the pictures and it will be closed once the project ends). The photos can be you with a mask or without a mask but where MCS can be identified. More than photographic quality, I’m looking for the visual impact of all the pictures together.

I hope you like the project and will join it!

NOTE: I’m open to sharing the collage with any other blog or website from all around the world that wants to post it.

Link to request of photos in Spanish.

P.S. I would like to take this opportunity to tell you that, as some of you know, I have recently closed my personal Facebook account so that I can focus on my health. You can still stay in touch with me through my blog NO FUN and my two Facebook pages: for my blog and for my book.

Come visit me at NO FUN. English section here.

 

Many members of our canary community have adopted yellow as this year’s theme color for MCS Awareness Month!

Jacquelyn Palmer-Boyce, one of our flock, surrounds herself in canary yellow for MCS Awareness Month. ©2010 John Boyce

 

Heralding MCS Awareness Month, profile photos radiating the warmth and vibrancy of yellow are popping up throughout our community on Facebook and on our network. Yellow, for those of us with Multiple Chemical Sensitivity, symbolizes the canary in the coal mine, with which we all identify. Our identity as a canary embraces and honors our bodies’ wisdom, and uses our song to alert the world of the menacing dangers of toxic consumer goods and a polluted planet.

“The color Yellow has stood for wisdom and intellect throughout the ages. It is full of creative and intellectual energy. A sun color, it makes us feel happy and optimistic. Expansive and free to do and be all that we can be. Cheerful, Joyful, Curious, Yellow promotes optimism. Helps you feel expressive, friendly and experimental.”

Jacki, who had to give up her career as a nurse due to developing Multiple Chemical Sensitivity, turned her misfortune into a blessing, inspiring us all. She’s athletic, often kayaking, hiking, and working in her garden. She and her husband, John, live a completely nontoxic lifestyle, growing veggies and roots crops in an organic garden, and raising chickens for meat and eggs. John, who took Jacki’s photo above, hunts wild game, bringing home venison, rabbit, goose, turkey, beef, lamb and goat. They eat tons of fresh veggies, green smoothies, but not much bread and no sweets.

About the above photo, Jacki says, “Yellow is the color for MAY… learn, and educate others on MCS… we need your help. Thank you for caring and sharing… love ya, jj.”

~~~

Thanks to Lourdes Salvador for her contribution to this post about the color yellow.

 

Poem by guest blogger Amy Pratt.

Amy_and_Celeste

Amy, 12, with Dick Zlab and guide dog Celeste, 19 months, at graduation for Guide Dogs for the Blind, San Raphael, California. ©2010 Amy Pratt

What is the value of a name?

~1~

Just ask any survivor
with numbers tattooed on their arm
what it means to have their name remembered.

This entry is dedicated to Judy C. Miner,
one of the few who has bothered
to remember my name all these years
and who is still willing to at least make eye contact
and speak with me.

I am so tired of being a ghost in a community where I once belonged.

I had no idea I could lose more
than my health and my job of nine years.
I am unable to work,
labeled as “a liability.”

I have cognitive issues
and often rely on pre-written scripts.
Ironically,
I cannot read or write on a consistent and reliable basis.

I used to be a Library Technician for a community college.

Education you never lose,
but the ability to use it,
that’s a different story.

Acknowledgement is a basic need
for support and understanding.

“In order to communicate with
and show respect to others,
a name is a basic need.”

Continue reading »

 

Canary ornament

Photo by Connie Rae.

Thanks, Connie!

 

The Canary Report produces a video where fifteen women bare all to tell the naked truth about life with Multiple Chemical Sensitivity.

This video contains nudity, strong language and a bunch of women telling the absolute Truth about living with MCS. Viewer discretion and an open mind is advised.

These images are also available as a 2010 calendar:

Link to Version 1 The Naked Truth About Multiple Chemical Sensitivity.

And Version 2 The Naked Truth About Multiple Chemical Sensitivity: Seeking Our Nature.

 

The Canary Report’s 2010 Calendar is released! Fifteen women tell The Naked Truth about Multiple Chemical Sensitivity.

Calendar1

The Naked Truth Calendar Cover

I’m thrilled to announce the release of The Canary Report’s 2010 wall calendar! Since there are 15 women participating in the project, I designed two versions: one with 12 different women, and one centered around the theme “Seeking Our Nature,” which features 10 women, all in nature settings.

This project was an extraordinary process for everyone involved. The concept of expressing life with Multiple Chemical Sensitivity through photos in the nude was inspired by a valuable member of our Canary Report community, Eva Caballe, who bared all for an online magazine in her country of Spain. Eva’s photos in that art mag were accompanied by an essay describing her life with MCS, and garnished so much interest that it’s been translated into nearly a dozen languages around the world.

But the power of such a bold statement in attracting worldwide attention was not really my motivation in wanting to do a calendar based on the same type of theme. I saw it as an opportunity to create a work of art, a way for women to express their story about living with MCS in a bold and brave way that would give voice to their struggles with and triumphs over this challenging illness in a way that all the words in the world could never do. For me, as the editor, and ultimately a participant, it was about giving these incredible women an opportunity to honor and love their bodies’ wisdom not in spite of MCS but because of it.

There have been critics of this concept along the way. A couple of people told me they weren’t sure it was a good way to promote our cause. One person said he thought it would add to the false assumptions that MCS is a psychological illness because we would all look crazy. I could not disagree more. The photos that were submitted for this project knocked my socks off. The only guidance given was for each woman to tell her story through a photo or two, expressing joy or sorrow, challenges or triumph about living with MCS. I asked that each woman think about the setting and to look at it as a work of art. And when the photos started arriving in my email box, I was stunned at the beauty and jaw-dropping naked truth that came through in every shot. Brava, Canaries, Brava!

I’d like to take this opportunity to thank everyone who participated:

The cover girls Judith (Spain) and Karen (Australia).
Jasmine (United States)
Silvia (Spain, Germany)
Candy (Australia)
Leslie (United States)
Linda (Canada)
Beck (Australia)
Mokihana (United States)
Missy (United States)
Anabel (Spain)
Marta (Spain)
Katrina (United States)
And our inspiration, Eva (Spain)

The wall calendars are available for purchase (Version 1 and Version 2). All profits will be donated to the Environmental Working Group, a nonprofit on the leading edge of fighting for toxic chemical policy reform. I’m sorry to say that I cannot guarantee that the calendars are safe for people with MCS, but over the next week or so, the photos will be published in other media forms such as videos, so everyone will be able to access and enjoy the spirit of the calendars. And of course everyone can go view the calendars at the links above. In the U.S. you are guaranteed delivery by Christmas if you order by Dec. 20. And right now there is a great discount, $9 off all calendars, look for the discount code at the top of the shop’s page. Feel free to contact me with any questions.

Thanks again to everyone for all your support!

Aloha,
Susie xoxo

Link to Version 1 of the calendar The Naked Truth About Multiple Chemical Sensitivity.

Link to Version 2 of the calendar The Naked Truth About Multiple Chemical Sensitivity: Seeking Our Nature.

 

Sheri has a passion for animals and an eye for landscapes.

sheriSheri (at left in a cotton field), aka SheriDragonfly, is a member of our social network and often shares her beautiful photos with us.

I love her landscapes, but I’m especially fond of her animals and insects. Deer, hummingbirds and dragonflies are a few of her favorite creatures.

You can view more photos on her Profile Page on our network here.

Or visit her blog Sheri’s Healing Flower Garden to view more.

dragonflyOne of Sheri’s signature dragonflies.

autumnA landscape taken on Sheri’s October 10th birthday in the Great Smoky Mountains of North Carolina at 6000 feet.

catAnd Peebo. Heh.

©2008-2012 The Canary Report Suffusion theme by Sayontan Sinha