Dear President-Elect Obama: Health care is a right

Yesterday’s post on President-Elect Obama’s request for input on Health Care inspired many of you to write him about Multiple Chemical Sensitivity. Bravo! Like true canaries, you are out front sending your messages of warning and need.

I’d like to post the letters if you would like to share. If you’ve saved a copy, send to me via email to susie(at)thecanaryreport(dot)org.

Missy Gluckman (at left) wrote me this morning with a copy of her remarks. The Canary Report has been following Missy’s struggle with severe illness and MCS brought on by toxic mold exposure at her place of work. Here are Missy’s remarks to President-Elect Obama:

Dear President Elect Obama,

Thank you for asking for our input!

I would like to see ND (Natural Doctors - licensed by many states) included more regularly in health care plans. In addition, natural supplements that are prescribed by NDs are not covered by health insurance and I would like to see this change.

Why do I care about this? Well, let me clarify: I tried traditional medicine for 39 years of my 40 and switched recently to an ND after 3 years of treatment for a variety of illnesses caused by mold/toxic exposure that nearly killed me at 37.  My ND, thankfully, is covered by my insurance plan (Anthem - state of CT), but this is RARE. The ND has been the only person in 3 years who has given me ANY relief from toxic poisoning and the related illnesses (thyroid, liver and lung damage, multiple chemical sensitivity, etc). Without her unique approach to healing, I would likely be pushing for Full Disability which costs the govt a lot more than me being healthy and working (i’m categorized as Partially disabled by NY State worker’s compensation - but I choose to push through it and work bc I WANT to be productive and could not afford to live on $400 a week as granted by worker’s comp).

The natural approach would potentially improve the health and quality of life for thousands who suffer from toxic exposure, yet 99% of people will not go to this type of Dr bc of lack of insurance. An avg appt is $200 and supplements (which change each time I go  - can be as little as $12 or as much as $800).   The pharma companies are driving policy and are not always the best solution (in my case, the traditional pharma solutions resulted in a 30 pound weight gain which caused a whole new host of issues and simply did not work on any above stated conditions).

So, please help people who are suffering by giving them the option of licensed NDs and not allowing health insurance companies the right to deny a licensed dr into the network if they meet the criteria (i.e. licensed, etc - my ND was denied access into the Aetna network.)  Natural plant supplements have been used for CENTURIES in countries such as India, Brazil, etc with extremely positive effects - please fund the study and use of supplements so that they can be covered under insurance plans.

Secondly, I would like to ask for a law that requires manufacturers to state the contents of “fragrance” in their items sold (such as candles, lotions, Fabreze, etc). As a person who suffers from Multiple Chemical Sensitivity (MCS), fragrances (which are toxic and some are carcinogens) are like kryptonite to me - within minutes I’m forced to go to bed due to the crippling ear pain, respiratory struggles, etc), all so someone can “smell nice”. If people and the govt understood what was actually in “Fragrance” as a category and how it can cause brain fog and behavioral issues in certain children, they would craft some meaningful laws to protect them and people like me who suffer MCS.

PREVENTION of illness is a big part of the need to restructure our health system. If daily toxins weren’t permitted - and certainly not encouraged - less people would suffer from illness and less children from asthma.

I got ill working at SUNY Rockland Cmty College - at a desk (I was a college administrator.) I was exposed to mold mycotoxins such as stachybotris and penicillium. These cause short term memory loss (brain damage) and hemorrhaging in babies. The school knew about the mold for at least a decade and did nothing to rectify it …WHY? Because our govt (unlike most industrialized countries in the world) has ZERO laws about mold.

Did you know that African American children in urban areas suffer from the HIGHEST rate of asthma in the country - why? Reports indicate that mold in public housing is one major factor - again, no one dictates that you must be permitted to live in a place that is safe from health issues.  Mold is a major cause of permanent illness which drains the economy and feed the pharma system.  This needs to change.

THANK YOU President Elect Obama for asking and for giving us a voice in our lives.  Without my health, I am nothing. Simple as that. Thankfully I am employed by the State of CT and have options - MOST DO NOT and as you said, health care is a RIGHT, not a luxury.

Good health to you all.

Documentary on toxic threat to male reproduction system

I encourage you to watch this documentary, The Disappearing Male, about the toxic threat to the male reproductive system. Click on the green arrow and the link will take you to the site where you can view the vid.

“We are conducting a vast toxicological experiment in which our children and our children’s children are the experimental subjects.”

-Dr. Herbert Needleman

The Disappearing Male is about one of the most important, and least publicized, issues facing the human species: the toxic threat to the male reproductive system.

The last few decades have seen steady and dramatic increases in the incidence of boys and young men suffering from genital deformities, low sperm count, sperm abnormalities and testicular cancer.

At the same time, boys are now far more at risk of suffering from ADHD, autism, Tourette’s syndrome, cerebral palsy, and dyslexia.

The Disappearing Male takes a close and disturbing look at what many doctors and researchers now suspect are responsible for many of these problems: a class of common chemicals that are ubiquitous in our world.

Found in everything from shampoo, sunglasses, meat and dairy products, carpet, cosmetics and baby bottles, they are called “hormone mimicking” or “endocrine disrupting” chemicals and they may be starting to damage the most basic building blocks of human development.

Link

Thanks, Linda!

Who’s chirping about Multiple Chemical Sensitivity today?

Glenda at Writing Stories About Real People, an eclectic blog chock full of interesting topics, writes about a tough week with her chemical sensitivity. In her post entitled “Indoor pollution is killing me!” she says:

This week, although I’ve gone as green as possible in my house, we are having a renovation done and after the plumber had come to put in the pipes for the washing machine, I had the worst attack I’ve had in many years. Turns out it was the glue used on the PVC piping. The harsh chemicals took my breath and I had to go outside to breath[e]. We closed off the new laundry room, placed an air filter machine in the living area but I had to retire to my little cubby hole of a room with my own air cleaner which runs day and night, close my door and hibernate.

The Windsor Star talks to Susan Jasper, vice-president of the Myalgic Encephalomyelitis/ Fibromyalgia Society of Alberta (ME/FM), who has fibromyalgia.

Q: How are ME/CFS [Chronic Fatigue Syndrome], fibromyalgia and multiple chemical sensitivity related?

A: They are all distinct, but the reason we lump them together is we think they’re environmentally linked, in the sense that people are affected by their environments more than (with) other conditions. Usually ME/CFS is post-viral, while fibromyalgia is more commonly related to physical trauma, like a motor vehicle accident or a multiple head and neck trauma, and then the pain spreads. Multiple chemical sensitivity can start on its own, for example if you have a history of being in a sick building, where there’s little ventilation and chemicals from the office such as toner or paint. It starts as an exposure problem that generalizes.

MCS America posts an informational flyer on the Quick Environmental Exposure and Assessment Inventory, a standardized questionnaire developed by Dr. Claudia Miller that assists researchers and clinicians when evaluating patients for chemical sensitivity.  It measures exposure levels and symptom severity and estimates the life impact of a chemical injury.

Poverty and Multiple Chemical Sensitivity

Blog Action Day 2008: Poverty

Blog Action Day is an annual nonprofit event that aims to unite the world’s bloggers, podcasters and videocasters to post about the same issue on the same day. The aim is to raise awareness and trigger a global discussion. Blog Action Day 08’s topic is POVERTY. Here is my contribution.

Coping with Multiple Chemical Sensitivity is a challenge on every front in a person’s life. It impacts employment, housing, social activity, personal relationships, personal care, eating habits, exercise, recreation, and leisure. Health care becomes confusing and disorienting because medical doctors do not recognize MCS and therefore do not know how to help. To add insult to injury, some MDs believe MCS is psychosomatic, and either dismiss complaints or send the patient off to the shrink.

And when people with MCS are forced to seek out alternative health practitioners, it’s a crap shoot. While most practitioners– acupuncturists, nutritionists, dentists, and others– have good hearts and surely want to help, chances are pretty good that the patient will be led on a wild goose chase, and waste precious financial resources on alternative therapies and supplements, hoping for that magical cure.

But a cure for MCS is most likely going to be elusive. After all, MCS is not a disease or allergy, it’s a reaction to low level poisoning from toxic chemicals. So the more practical course of action might be for the sufferer to find safe housing and employment, stay away from toxic friends and family, dump toxic clothing and replace with natural fabrics, eat organic foods, buy a HEPA air filter and vacuum, find a good water filter, move to a place with cleaner air. But how easy is that course of action for anyone let alone someone who is sick with depleted resources?

So you can see how MCS can catapult a person into poverty. When forced to leave employment because the air is too toxic to breathe, there is no paycheck. When there is no social or familial support system and no safe housing, a person is out on the street. If there’s not sufficient money for fresh organic food, nutritional supplements, air and water filters, and a HEPA vacuum, then a person’s health further deteriorates. And a life on that edge can very quickly spiral into poverty.

This is why too many people with MCS are sleeping in cars or in aluminum trailers in a friend’s back yard. Many who can’t find safe housing or employment hunker down, strip down, go zen, go without, and struggle to adapt to the newfound state of limited resources. This is the world of poverty, and if anyone with MCS thinks this scenario isn’t a heartbeat away, they are fooling themselves. There is no safety net for people with a health condition not recognized by the government or mainstream medical community.

Such is the life of canaries. It’s not just sensitivity to toxic chemicals that people with MCS live with, it’s acute sensitivity to the social injustice of a negligent health care and governmental system that refuses to even acknowledge there’s a problem.

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If you’d like to learn more about Multiple Chemical Sensitivity and poverty, Grist: Environmental News and Commentary covered the topic in 2006.

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Seven years after 9-11, breathing ailments persist

As the world waits — and waits — for the World Trade Center’s redevelopment project to rise from the gaping hole along Church Street, downtown residents and recovery workers continue to suffer from the illnesses related to the September 11th attacks. Sinus pressure, coughing, wheezing and difficulty breathing are just a handful of symptoms afflicting thousands of those who lived and worked in lower Manhattan during and immediately after the tragedy — all are effects of the air’s contamination.

Years after the attacks, New Yorkers and out-of-state volunteers continue to emerge saying they suffer from a World Trade Center related illness. Last week, Mayor Michael Bloomberg launched a campaign to seek out such victims — with advertisements soon to appear on subways and television screens across the city. The mayor and medical experts predicted thousands — maybe hundreds of thousands — of untreated responders, volunteers and residents could be eligible for medical care.

At least for now.

Though advocates say the city has adequately responded in the last year to the health effects of the World Trade Center attacks, its ability to treat victims is threatened. Calling federal support “inconsistent and episodic,” Bloomberg said the city needs to have a stable funding source from Washington if it is to continue providing medical care to 9-11 workers and residents.

As of now, the funding the city receives could be cut off in 2009 — eight years after the attacks. With little known of the long-term effects of air contamination downtown, a lack of funding, advocates and city officials say, can cripple the city’s ability to adequately address the health needs of victims in the future.

The Response and Results

A report released last week from the World Trade Center Working Group — an expert panel appointed by Bloomberg to monitor Sept. 11th health-related studies and issues — showed studies were consistent in finding the prevalence of elevated rates of asthma and other respiratory diseases among recovery workers and those who lived or worked downtown.

Link to Gotham Gazette.

For a look at the prevelence of Multiple Chemical Sensitivity among first responders and others affected at Ground Zero, visit the Chemical Sensitivity Foundation:

The primary goal of the Chemical Sensitivity Foundation, a 501(c)3 nonprofit corporation, is to raise public awareness about multiple chemical sensitivity. To this end, we are now enabling visitors to this site to play a short documentary produced/directed by Alison Johnson that is titled Chemical Sensitivity: A 15-Minute Introduction. This DVD includes information about the development of multiple chemical sensitivity among veterans of the 1991 Gulf War and First Responders and others exposed to the World Trade Center toxins.

It’s a little dry in places but riveting if you’re interested in MCS. Here it is: