The Canary Report

BP blowout cleanup workers are getting sick

Posted on Jul 09, 2010 by Susie Collins in Blog, Environment, Media/Videos, Susie Collins

BP blowout cleanup workers are getting sick; Exxon Valdez survivor warns of long term health effects, and an activist chemist currently on site in the Gulf reports on current illnesses in BP cleanup crew.

Click on the video, it will automatically start at the beginning of the section on BP.

As the BP oil spill enters its 78th day, cleanup crews across the Gulf Coast are working to try and remove what they can of the expanding oil slick. And many of them are getting sick doing it. A growing number of cleanup workers have reported suffering flu-like symptoms including headaches, dizziness, fatigue, nausea and problems with memory and concentration. We speak with a Louisiana chemist who testified before Congress to call for greater worker protections and a former general foreman of the cleanup crews of the 1989 Exxon Valdez oil spill.

Interviewed:

Merle Savage, general foreman of the cleanup crews of the 1989 Exxon Valdez oil spill in Alaska’s Prince William Sound.

Wilma Subra, chemist and president of Subra Company. She provides technical assistance to community groups on environmental issues and to the Louisiana Environmental Action Network.

Click here for rush transcript.

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Tags: Air, Chemicals, Environment, Environmental Illness, Pollution, Toxic, Video

Gulf Coast: Grab your respirators!

Posted on Jul 04, 2010 by Susie Collins in Blog, Environment, Media/Videos, Susie Collins

3M #4279 Organic Vapour/Inorganic and Acid Gas/Ammonia/Particulate Respirator

RT America reports on health problems in the Gulf caused by chemical fumes from crude oil and dispersant originating from BP oil well blowout. Don’t miss reference to the Exxon Valdez spill and the analogy to 9/11.

6/30–What can go wrong will go wrong. Such is the case for the Gulf Coast and the unending saga of the BP oil spill that’s now in its eleventh week. What’s wrong now is this: winds from Hurricane Alex are pushing tar balls as large as apples onto Gulf Coast beaches. This has stopped cleanup efforts momentarily and even undone some of the spill control. As one marine scientist put it: “We lost all the progress we made.” But the winds picking up are a giant concern for something else.

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Tags: Air, Children's Health, Environment, Environmental Illness, Pollution, Products, Toxic, Video

Kindra Arnesen speaks out on lack of respirators for oil well blowout “clean up” crew

Posted on Jun 30, 2010 by Susie Collins in Blog, Environment, Susie Collins

Kindra Arnesen, whose husband was made ill during his work on “clean up” efforts in the gulf, speaks out about harsh realities in the impact zone.

On Monday I blogged about a timeline of health horrors caused by the BP oil well blow out. In that post, I told you about a commercial fisherman’s wife, Kindra Arnesen, who broke the silence about her husband’s deteriorating health since he worked on clean up efforts in the Gulf.

Above is a talk Kindra gave at the Gulf Emergency Summit in New Orleans on June 19.

Kindra Arnesen, a young mother of two 8 and 5 year-old children, and the wife of a commercial fisherman in Louisiana, became extremely concerned about the lack of progress of the relief operations of the BP oil disaster in the Gulf of Mexico. She had the opportunity to investigate on the spot by participating in a number of meetings with authorities, and in on-site “clean-up” visits. She vividly and powerfully describes, at the Gulf Emergency Summit in New Orleans, the harsh reality of what’s really going in the area – and the need to prepare for evacuation of populations.

You’ll be especially interested in Kindra’s explanation about why workers are not given respirators. From the transcript:

“I’m gonna go into the health issues for a moment, if you don’t mind. I sat through endless hours of meetings with BP’s safety officers. I sat through an hour and 45 minute meeting with the Coast Guard Safety Officer, both in the Homeland Incident Command Post, as well as a gentleman from OSHA.

“In order to obtain a respirator for our responders — now this isn’t just commercial fishermen — I’m talking about Coast Guard members, all responders, people off the street, everybody involved.

“Number 1: They have to fill out an OSHA questionnaire. Number 2: They have to have a physical evaluation by a medical professional.

“But, EPA is doing air monitoring. Everything’s OK. It’s great. Yeah, imagine that.

“At any rate, there is in fact some Act somewhere in OSHA’s law, that says that volunteers have a right to wear a volunteer respirator. But, as we all know, BP is taking over our Gulf. BP rules right now, our Gulf, I mean… Bottom line, that’s who’s in charge of the situation.

“They couldn’t even run their own company and they are in charge of this response! I’m totally appalled!

“They can’t wear a volunteer respirator because if they’re not properly trained… BP’s rules are, they have to be properly trained in order to wear a respirator. Now, BP said that they will provide the training and they will provide a respirator. But, everything’s OK! So, they don’t need to be trained and they don’t need a respirator. And as far as the right to wear volunteer respiration? Guess what? If you don’t follow BP’s rules, you don’t have a job. And that’s what they told me.”

Click here to read full transcript.

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Tags: Air, Chemicals, Environment, Environmental Illness, EPA, Pollution, Toxic, Video, Work

MCS and the search for a safe community

Posted on May 24, 2010 by Susie Collins in Blog, Healthy Living, Keith Carlson, MCS

Based on our research and experience thus far, our conclusion is that intentional communities are not a safe bet for those with MCS and environmental illnesses, and the learning curve remains steep even for those who claim to be living a sustainable and healthy lifestyle.

By contributor Keith Carlson, RN, and Mary Rives.

Keith

In honor of MCS Awareness Month, my wife, Mary Rives, and I are posting this co-written article in order to share more deeply regarding one of the most significant reasons that we undertook our current journey around the country.

Because we both live with Multiple Chemical Sensitivity (MCS), finding a safe place to call home is paramount to us, and those who have MCS understand what it’s like to live like a “canary in the coal mine” in a world saturated with substances that undermine our health and impair our ability to function effectively.

Mary

With recent reports showing that even ADHD may be linked to pesticide use, there is a crucial necessity for us to be more public about our MCS, our search for safe housing, and the need for greater awareness about the effects of chemicals, pesticides, and manufactured fragrances on the health of humans and the environment. That said, many hospitals and other health care facilities are now becoming fragrance-free in an effort to support the health of patients, thus awareness is indeed growing about this important public (and personal) health issue.

We offer this article as a missive of support and hope to other canaries, as well as a plea to those without MCS—especially intentional communities—to more deeply understand our plight.

~Keith Carlson and Mary Rives

~~~

When it comes to finding safe housing, everyone with Multiple Chemical Sensitivity (MCS) will agree that this is one of the most daunting challenges of living with this most highly inconvenient and disheartening medical condition.

After living in New England for 20 years and becoming chemically injured in the process (most likely due to hidden mold in our home), it was no longer safe for us to live in our beloved neighborhood or continue to work in our meaningful jobs.

Our lovely arboreal homeowners’ association provided what at first appeared to be a healthy sanctuary for our family of three, but our blissful existence was often impeded by the imposition of a variety of common household toxins, including the fumes of lighter fluid, charcoal, dryer sheets, and lawnmower and vehicle exhaust. Lying in hammocks or eating home-cooked meals on our custom-made screened-in porch, we were often driven indoors by clouds of the aforementioned toxins filtering through the forest and onto our property.

When exposed to various chemicals and environmental toxins, we each experience a similar yet somewhat different constellation of symptoms, including headache, confusion, sore throat, irritability, asthma, hives, joint pain, muscle pain, and burning eyes. When mold was discovered in our attic after our house was put on the market, the potential culprit of our mutual MCS only added to our intense desire and need for a safe refuge.

In our workplaces which had fragrance-free policies, we were both exposed to environmental insults that exacerbated our condition and underscored the need to radically change our lives. Policies are virtually ineffective without enforcement, often driving wedges between people of varying cultures and levels of acceptance, support and awareness. The commitment to educating others can be exhausting, and workplace exposures impair job performance and strain professional relationships. Thus, we canaries often find ourselves frequently leaving otherwise satisfying and meaningful jobs in order to preserve our health and sanity.

Having lived in an intentional community early in our relationship, we decided that ecologically-minded intentional communities with a focus and commitment to sustainability would offer the greatest potential for finding a safe home. We hoped that this form of community would use earth-friendly, biodegradable and non-toxic products in keeping with that vision of sustainable living, and provide for us a safe place to live our lives in peace and health.

Hitting the proverbial road in a 29-foot mobile home, we began to scour the country for an intentional community or eco-village that offered an opportunity for healthy living. Traversing the East Coast, Deep South, Gulf Coast and Southwestern United States, we visited over two-dozen intentional communities in more than twenty states over the course of seven months.

Many of these communities profess to live close to the earth by using sustainable building and permaculture techniques, renewable energy sources, organic gardening, and other well-meaning practices. In our naivete, we did indeed assume that “sustainable living” would include the use of earth-friendly and non-toxic products, but we’ve sadly found that many such communities simply reach for the cheapest common denominator, with Tide, Bounce, Palmolive, Cascade and other products being the easy mainstream fix.

Our disappointment and disillusionment were great when many visits to such communities revealed that people were often unwilling to “walk the talk” when it came to using safe and healthy products. As to the issue of being fragrance-free and MCS-friendly, most communities appeared oblivious at best, much to our dismay.

Earthaven Ecovillage in Asheville, North Carolina, Sunflower River Community in Albuquerque, New Mexico and The Commons on the Alameda Cohousing Community in Santa Fe, New Mexico are the three communities that we have found in our travels to best embody earth-friendliness and consideration for those living with MCS.

While people at Earthaven do indeed burn a great deal of wood for winter heat and state that they are not well-equipped to have people with severe MCS join them, many of the residents appear to embrace true sustainability. Sunflower River has no openings for new members at this time but they are a growing community that truly walks their talk. Twins Oaks and Acorn communities in Southern Virginia are runners up, but they use lavender scented natural detergent which neither of us can tolerate without becoming symptomatic.

Although the numbers are few (and we have only visited a fraction of the intentional communities in the United States), we are grateful to have found a few that seem to understand how important it is to use biodegradable products that are healthy and earth-friendly. And of these few, the Commons on the Alameda is the only one who uses all fragrance-free products!

We are planning to live at The Commons this summer in order to test the waters and see how their experiment in MCS-friendly community is going. The Commons is an established cohousing community with 28 homes and a common house located in Santa Fe, New Mexico.

The Commons on the Alameda Cohousing Community in Santa Fe is an extremely MCS-friendly community that has adopted a strict fragrance-free policy in an effort to create a safe haven for residents with environmental illness. Championed by an medical doctor specializing in environmental medicine who lives at the community, the shared spaces at The Commons are for all intents and purposes fragrance-free, and guests and residents are urged to comply with the policies. We are actually planning to live at The Commons this summer in order to test the waters and see how their experiment in MCS-friendly community is going, bringing with us great hopes that we will find it to be a safe haven where we can, at long last, feel comfortable and at peace.

For canaries considering looking into intentional community as a possible source of safe housing, we would like to warn those with MCS that even eco-villages and communities that espouse sustainable living as a way of life so often overlook the very products that people put on their bodies, into the water, and onto the ground. As many of us already know, mainstream products are often cheap, readily accessible, and have brand recognition that even the most alternative individuals cannot resist. The tendency (can we even say addiction?) to purchase such products is rampant, and even those who live in intentional communities often choose to drive to Wal-Mart and buy whatever cleaning products are on sale. We understand that communitarians also have to make ends meet, but when one’s habits as a consumer fly in the face of one’s proclaimed ecological lifestyle, questions are raised as to whether that community or individual is truly thinking clearly about their choices as a consumer and their commitment to the earth (and their health).

Based on our research and experience thus far, our conclusion is that intentional communities are not a safe bet for those with MCS and environmental illnesses, and the learning curve remains steep even for those who claim to be living a sustainable and healthy lifestyle.

Meanwhile, many of our fellow canaries live with severe MCS which prevents them from exploratory adventures like the one we’ve undertaken. They are unable to risk the dangers–and expenses–of the unknown, despite the fact that they have so much to contribute. Living with MCS sadly often necessitates social isolation in order to minimize symptoms which only worsen with subsequent exposures to the most basic of chemicals. Adding to the isolation are the common financial hardships caused by the medical need to let go of jobs in toxic work places. Employees with MCS are also frequently discriminated against by employers who are unwilling to make reasonable accommodations, despite the fact that MCS is recognized as a disability by the Americans with Disabilities Act.

Having MCS inconveniently interrupted our careers and engendered enormous out-of-pocket medical expenses in order to prevent our illness from worsening. Even with good health insurance, access to treatment has been very expensive and limited, and the fact that the AMA refuses to recognize MCS as a physiological illness makes finding sympathetic medical providers an additional challenge. Avoidance is the best medicine, thus our radical lifestyle change and quest for safe community living.

Our hope for the future is that more and more intentional communities will realize the importance of the need for safe housing, including across-the-board use of fragrance-free, environmentally friendly products. May they become safe havens for canaries of the coal-mine while taking their commitment to the earth and her inhabitants even further. Meanwhile, perhaps a few MCS communities will even be born from our collective desire for a safe place to rest our weary heads!

We remain hopeful that we will find a place to call home for the long-term where we can live safely and in better health. We also remain realistic that uphill battles and further education will be needed for those with whom we share living and breathing space, perhaps for the rest of our lives. For now, the two of us will continue to explore whether intentional community will fit thebill when it comes to healthy living as we land in our temporary nest with great hopes for a healthy future for all.

~~~

This post was originally published on my blog Digital Doorway, a digital venue for creative expression, nursing adventures, reflections, thoughtful reverie, thoughtless repose, and other flotsam and jetsam. You can also visit me at Mary and Keith’s Excellent Adventure, where my wife and I blog about living full-time in our new RV, traveling the highways and byways of America, visiting intentional communities, and bringing Laughter Yoga and the benefits of health and wellness coaching to new and old friends along the way! ~Keith

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Tags: Environmental Health, Environmental Illness, Healthy Living, Home, MCS, Multiple Chemical Sensitivity

Setting the record straight about Linda Sepp’s housing situation

Posted on May 09, 2010 by Susie Collins in Blog, Disability Rights, MCS, Susie Collins

A recent article in The Toronto Star is full of misinformation and inaccuracies about Linda Sepp’s housing problems. I’d like to clear things up.

Linda Sepp

The Star reports on Linda Sepp’s house hunting and eviction in an article by Theresa Boyle entitled Can Linda Sepp possibly be helped? The article is full of inaccuracies about Linda’s situation that I’d like to clear up.

Before I pick apart the points, I’d like to make clear that I am a friend of Linda’s. No, we have never met, but we have emailed with each other daily for almost two years. We’ve laughed together, cried together, spent New Year’s Eve together, helped many people with MCS together, hunted for informational materials together, and built The Canary Report together into what it is today. She’s been my research assistant, and truth be told, she’s been my mentor as I learned the ropes about Multiple Chemical Sensitivity and the problem of toxic chemicals in the marketplace and the environment. Linda is very smart. The information that she shares with others is solid; I never have to worry about checking her sources, she always backs up her claims with data and reports, and she’s thorough with her critical thinking.

But Linda is also very ill and completely disabled by chemical sensitivities, fibromyalgia, and electro hypersensitivity. The old house she was living in prior to eviction on May 5, her home of 19 years, was full of mold, and she also was frequently exposed to toxic fumes wafting in from the outside. She was living in a precarious, unsafe housing situation. And as her eviction date neared, she was becoming more and more ill in my opinion, as her emails became less frequest, less engaged and sometimes merely fragments of thoughts peppered with uncertainty about her future.

The process of house hunting for Linda as her eviction date of April 4 loomed was complicated and fraught with difficulty. She is what is known in the world of Multiple Chemical Sensitivity as a universal reactor, meaning she is uber sensitive to toxic chemicals, and the smallest quantity of exposure to VOCs, pesticides, laundry products and modern fragrance (which contains known toxic chemicals), among myriad other chemicals, make her very ill very quickly. Recovery is difficult. This health problem complicates house hunting, complicates finding a safe place to live. Housing opportunities that might seem a godsend to someone who is healthy or has a less serious case of MCS, cannot work for someone as ill as Linda.

So let’s look at the article written in The Star by Ms. Boyle. First up, Ms. Boyle’s description of what Linda was asking for, which the reporter couched in an incredulous tone that says to the reader “Look at what this woman is demanding!”:

The woman, who survives on an Ontario disability cheque, said she would like a “modest” three-bedroom house on three acres of land, surrounded by trees and fresh air. It should include a sauna and a sunroom, porch, patio or gazebo for reading and artwork. There should be a small barn for chicken, goats and an animal rescue. And for guests, a bunkie and detox shower.

Except that is NOT and never was Linda’s criteria for finding safe housing. That was Linda’s dream house list (every person with MCS has a dream house in mind, am I right?), that list was never the working list that her landlord nor her housing team was using as criteria, it never was what Linda was asking for. Basically, Linda was asking for a nontoxic two bedroom with clean water and fresh outside air. Period.

Next:

But skeptics question the existence of MCS. They acknowledge that people can have chemical sensitivities and allergies, but wonder if it is a stretch to say these can be a debilitating syndrome. A June 2008 article in the Journal of Environmental Science notes that there is “considerable doubt” about the condition “from the scientific community, political leadership and many in the general public who claim that it is psychological.” The U.S. Centers for Disease Control and Prevention do not recognize it, the article notes. But it goes on to say that it would be irresponsible of public health officials not to explore the possibility of MCS.

Who cares what the “the scientific community,” politicians or the general public think about MCS? What kind of reporting is that? Linda has sent Ms. Boyle copies of the current peer reviewed research on Multiple Chemical Sensitivity, which clearly shows that MCS is a physiological illness of toxicological origin. Linda is not pulling that info out of her hat, this is the peer reviewed research of Martin Pall recently published as Chapter 92 in the prestigious international reference work for professional toxicologists,  General and Applied Toxicology, 3rd Edition (2009, John Wiley & Sons).  Further, and just for the record, here’s a list of research on Multiple Chemical Sensitivity compiled by Professor Anne C. Steinemann and Amy L. Davis at University of Washington Seattle; this document lists about 100 citations for peer-reviewed journal articles that support a physiological basis for MCS. And I will note, the Centers for Disease Control just issued a chemical- and fragrance-free policy in all their offices nationwide because of the negative effect of those products on the health of their employees– the very products that make people with MCS ill.

Next:

Before forcing her out, W.J. [Linda's landlord] made the unheard of offer of buying a $200,000 house anywhere in the province and renting it to her for $500 a month. Her wish-list to the landlord was more reasonable than what she had provided to the city. She asked for wood floors, few stairs and access to a source of organic food. A house fitting the bill was found in Lindsay in February 2008, but after visiting it Sepp turned it down. It smelled of baby powder and made her feel sick.

W.J. proposed other homes, one in Huntsville and another in Lanark. The landlord offered to buy a Solo home, a prefabricated building that could be adapted to someone with allergies. All offers were nixed.

Although such an offer can seem above and beyond anything due Linda by her landlord, and although it can seem that Linda was unreasonable in refusing all offers, anyone with MCS knows that this deal is fraught with peril. At the most basic of levels, we all know the perils involved with a house that has been contaminated with products made from toxic chemicals like air fresheners and personal care products. I know dozens of cases of people with MCS renting homes that they thought they could decontaminate, only to be made sick for a year or longer until their lease ran out.

But Linda’s situation is more complicated than even people with MCS seem to understand. Linda was living in Toronto, unable to leave her house, and had people to shop for her. Part of her decision on taking the houses offered by the landlord was that she had to gamble that she would be able to move to the house and recover enough very quickly to be able to drive at least once a week, perhaps an hour away, to do her own shopping at organic markets. If she moved to a rural place in Ontario, not only would she have to be able to shop for herself, but also she would have to be able to handle the winters in Ontario alone in a rural setting. These are both huge responsibilities to take on if you are housebound and have been depending on people doing your errands for you. You can’t just “get it delivered.” The truth is that Linda had to take under consideration whether or not she could manage living alone rurally. That is a legitimate concern. Who knows if there would have been people locally that could help her after the move?

Next:

Friends and staff from the city’s shelter support office pored over real estate listings and thought they found the perfect solution: a $200,000 home in Bobcaygeon that had been built for someone with MCS. But Sepp turned it down because W.J. refused to pay an extra $45,000 to have a couple of extra walls installed. Besides, it had bad feng shui, she said.

This is by far the most egregious of errors in the article because it makes Linda look very bad when in fact Linda did no such thing as stated.  The landlord refused to purchase that house based on it being LISTED at $245,000, which was over the landlord’s cap of $200,000. The extra $45,000 had NOTHING to do with Linda asking for any walls to be built. The comment about the “bad feng shui” had NOTHING to do with Linda refusing an offer; at the most it was an off-handed remark made by Linda way after this house was discussed and rejected BY THE LANDLORD. In fact, had the landlord said okay to buying that house, Linda would have accepted it– I have the emails from her saying that she was ready to accept that house before she heard the landlord’s refusal to buy it.

I have received many negative emails and comments on both my blog and Linda’s blog (for which I am the admin) from people who think Linda is acting unreasonable. All the comments were generated because of this article by Theresa Boyle. I have not released any of them because I can’t see how they add anything valuable to the discussion, given that they were generated by misinformation.

To Ms. Boyle: Please be very careful about how you report on this story. Check your facts. Be open to exploring current research on MCS. Cross reference your information on Linda’s situation from two primary sources, as is your responsibility. This is a drama playing out in public about a woman whose housing problem represents the housing problems of thousands of people with Multiple Chemical Sensitivity. Please do not add to the din of misinformation that hurts our community and adds to our struggle for full recognition, full health care, and full social services.

And to those of you getting mad at Linda for her not accepting so many offers of housing: Please try to use this as an opportunity for practicing love and compassion. Judge not lest you be judged. Linda is a member of our community, a valuable member, and this is a time when we can open our hearts and do nothing but love each other. Anger serves no purpose whatsoever. Our job, as human beings on this blessed Earth, is to be kind and to love. Just do it.

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Tags: Chemicals, Environmental Illness, Home, Indoor Pollution, Law, MCS, Multiple Chemical Sensitivity, Research, Support, Toxic

Multiple Chemical Sensitivity: The importance of reducing the toxic load

Posted on May 07, 2010 by Susie Collins in Blog, Eva Caballé, MCS, Media/Videos

I didn’t know that air fresheners and laundry softeners have carcinogenic ingredients. The manufacturers hide all this information because they want us to be unsuspecting consumers who buy products without questioning the ingredients. But there are natural and healthier choices, and in most of the cases they aren’t more expensive.

By contributor Eva Caballé, Spain.

(Editor’s Note: Please help me welcome Eva Caballé as a regular contributor at The Canary Report! Eva’s story about her life with Multiple Chemical Sensitivity has been featured on TCR many times since last summer, and she started guestblogging here in February. I asked her to come join us as a regular contributor, and to my delight she’s said yes! She’ll blog here at The Canary Report on Multiple Chemical Sensitivity, disability rights, social justice, the state of MCS recognition in Spain, and give you tips about living a nontoxic life. You can read her full bio here. Eva makes her contributor’s debut with a video on the importance of reducing the toxic load in your life. The video was first aired at a conference in Spain on healthy cosmetics. Welcome, Eva! Aloha, Susie)

Eva Caballé

Hello, my name is Eva Caballé. I’m an economist from Barcelona, Spain, and I’ve lived with Multiple Chemical Sensitivity for four years, although I was diagnosed only two years ago. I write NO FUN, a Spanish blog about MCS and Chronic Fatigue Syndrome, with information and advice for people who are sick or who want to live a healthier life free of toxics. My blog includes an English section. And I have written a book Desaparecida: Una vida rota por la Sensibilidad Química Múltiple (Missing: A life broken by Multiple Chemical Sensitivity) that was published in Spanish last year by the publisher El Viejo Topo .

First of all, I want to thank Silvia Ferrer for inviting me to this conference about healthy cosmetic to talk about MCS, although I have had to record my conference in this video, because my illness doesn’t allow me to leave my house.

Maybe some of you haven’t heard about Multiple Chemical Sensitivity. MCS is an acquired chronic illness which manifests with multisystemic symptoms as a reaction to very small exposures to toxic chemical products, meaning normal everyday chemicals but unnecessary ones like perfumes, air fresheners and laundry softeners.

MCS is a syndrome with four grades of severity, so not all of us who are sick suffer the same level of disability and isolation. Unfortunately, I have the highest severity and because of MCS I have developed other illnesses that make me live completely isolated, without leaving my house, and right now, not even leaving my bed.

The symptoms are chronic and they can become acute when we are exposed to chemical products. Symptoms are different depending on the sufferer, and in my case include dyspnea, tachycardia, dizziness and extreme fatigue. This is the reason why we must avoid contact with any chemical product.

There are two ways of developing MCS: from one single exposure to toxics at a high dose (fumigation, for example) or by many exposures to small amounts over the years, which is my case.

Over the years, our body accumulates chemical substances which circulate in our environment without any controls, in the food we eat, in the water we drink, in the air we breathe, in our beauty products, etc., until the toxic load is unbearable and we end up getting sick, which according to our genetic make-up, it could end up being MCS or other environmental illness like cancer, asthma, and allergies.

If you start noticing unbearable chemicals which you did not notice before or you stop tolerating alcohol or some food, you may be developing MCS. If a perfume gives you headache, if some chemicals give you dizziness or nausea, you may be part of the 12% of people who have chemical sensitivities in a mild degree.

Since my MCS started, before I got the right diagnosis, I had to make changes at home, because the laundry detergent, the toothpaste or for example the shower gel suffocated me. My body guided me to eliminate all the products that were intoxicating me. In spite of not knowing the name of my illness, I started to look for alternatives to substitute for all these toxic products. Two years later, when I knew that I had MCS and that I had to avoid all the chemical products, I realized that my body had led me on the right track.

Then I created the blog NO FUN, first of all to spread a video about MCS that I recorded at home for a TV program, and after that I started to share all that I had learned with other people who were sick and anyone who wanted to live a healthier life free of toxics.

I also have allergies since I was a child, but nobody warned me that I was in a risk group to develop MCS. If I was aware of this, I would have changed my habits and I would have used the products that I use now. I also didn’t know that most deodorants are toxic and there are a lot of studies that link some ingredients with breast cancer.

I didn’t know either that air fresheners and laundry softeners have carcinogenic ingredients. The manufacturers hide all this information because they want us to be unsuspecting consumers who buy products without questioning the ingredients. But there are natural and healthier choices, and in most of the cases they aren’t more expensive.

Each day, there are more children with allergies, asthma, with celiac disease, dermatitis, even cancer. MCS is growing rapidly and also affects younger people, even children. This horrifies me and I am ashamed to live in a world where economic interests are put before health, where they let us get sick and then they abandon us with no help.

I decided to write a book with my history in part to denounce all of this, because I don’t want anybody else get sick when this can be avoided. While the health authorities do nothing, everyone has the option to change their way of life, to stop using these toxic products and to start using ecological products, which are respectful to our bodies and the environment.

I only wish that my experience is useful in preventing others from getting ill.

~~~

Eva Caballé blogs at NO FUN.

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Tags: Children's Health, Environment, Environmental Health, Environmental Illness, Fragrance, Healthy Living, MCS, Multiple Chemical Sensitivity, Video

Book and short film documentary: Poisoned by Pollution

Posted on May 06, 2010 by Susie Collins in Blog, MCS, Media/Videos, Susie Collins

One woman’s story about being poisoned in a sick building in Seattle, and coming to triumph over her illness in Paris.

Anne Lipscomb

Anne Lipscomb is a former award-winning public relations manager who developed multiple chemical sensitivity in 1993. She became one of only a handful of people in the state of Washington to receive workers’ compensation for illness related to sick-building syndrome. She wrote a book called Poisoned by Pollution, and made a documentary film, Annie’s Story, about her illness and writing of the book. Set in Seattle and Paris, it’s a story to which every person with environmental illness can relate. Brava, Annie! Thank you for all your hard work on this!

This movie tells my story… the story about overcoming adversity while coping with long term illness. May it inspire you to carry on. It is not easy to live life while coping with a chronic illness and overcoming powerlessness. I hope my story of overcoming adversity will help you to triumph over your own adversity and overcome any obstacle that may show up in your own path. Watch my movie then read my book.It will give you a new perspective on what is possible in the face of adversity. I hope that my story may be of help to you.

I write to you from the perspective of illness. Sickness imposes limitations. They alter but they need not define me. My perspective, as a result, is a hopeful and enlarged one. It is a story of overcoming adversity.For a long time I used to go to bed feeling as if I lived in a prison. My chemical illness had closed off my world. This illness no longer writes my life. I have become my own author. The story of how this came to be is one I want to share. This book is not just a re-telling of my illness. It is also the story of how I came to be this new person, with a newly expanded expression of my soul, and then, a writer of my life.

Anne Lipscomb's book Poisoned by Pollution.

Writing this book (Poisoned by Pollution) while sick has been a challenge. I’ve spent too many days and too many years lying in bed feeling like poisons were coursing through me. For years, I could not even read or write without growing dizzy and nauseated. Sometimes I would talk into a tape recorder instead. Or I would write a few sentences, then close my eyes until the dizziness and nausea subsided before continuing on. At one point I almost died when my digestive troubles worsened so much that I couldn’t hold down food or water, which led to my body being in a starvation state with my organ systems shutting down. The road to this book has been long indeed.

This book and movie have been 15 years in the making.

Anne Lipscomb

Link to Anne Lipscomb’s website.

Link to watch the whole film, Annie’s Story: From Poisoning to Triumph. It might take awhile to fully load, be patient, it’s worth it!

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Tags: Environmental Illness, MCS, Multiple Chemical Sensitivity, Sick Building, Video

Popular TV show in Spain features Multiple Chemical Sensitivity

Posted on Apr 30, 2010 by Susie Collins in Blog, Eva Caballé, Guest Bloggers, MCS, Media/Videos

On April 28th, Telecinco, one of the most important national TV channels in Spain, started the news at lunch time with a Multiple Chemical Sensitivity report.

By guestblogger Eva Caballé, Spain.

On April 28th, Telecinco, one of the most important national TV channels in Spain, started the news at lunch time with a Multiple Chemical Sensitivity report. This report was done with the participation of David, my husband, me and Dr. Orriols, the author of the study “Brain dysfunction in Multiple Chemical Sensitivity.” In the video, we claim the recognition of MCS in Spain.

The report was aired again on the News at 21h, and yesterday on the News at 8h, with also a direct interview with David that they wanted to do because everybody in the TV channel was shocked because they didn’t know about MCS before. A long version of the report will be aired next week.

David recorded the images inside our house because nobody can come to our house owing to my critical health condition. It’s in Spanish but a picture speaks a thousand words.

~~~

Eva blogs about Multiple Chemical Sensitivity at NO FUN. English section on blog here. Link to Eva’s page on Vimeo here.

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Tags: Environmental Illness, MCS, Multiple Chemical Sensitivity, Video

Film: Submission

Posted on Apr 22, 2010 by Susie Collins in Blog, Media/Videos, Susie Collins

SUBMISSION: In defence of the unborn. A film by Stefan Jarl.

This documentary film, a rebuke on the chemical industry, will have its premier in Sweden on April 23, and in Denmark on May 5.

A documentary by Stefan Jarl featuring Eva Röse and 23 professors.

Thirty years ago I began shooting a documentary, which came to be called Nature’s Revenge (Naturens hämnd). It was about how humans manipulate nature and how nature strikes back. Since that day I have been continuously collecting material for a new film on the same theme; however, much more than a “Nature’s Revenge, part 2”.

Submission is a documentary about the ‘chemical society’ – the society we have been building since the Second World War. Back then, humans used 1 million tonnes of chemicals per year; the figure today is 500 million tonnes. The chemical industry is the fastest-growing industry in the world. The film is about the 100,000 chemicals we use every day, what they’re used for and what they do to us and our health. And I don’t mean food additives – I’m talking about chemicals we are exposed to in our daily environments: softeners (phthalates), flame retardants (PBDE), surfactants (PFOS, PFOA) and so on.

Professor Åke Bergman at Stockholm University is my guide throughout the film, analysing the chemicals in my blood and explaining what they are. It turns out I’m carrying several hundred foreign chemicals. I can’t hide my shock.

After discovering the huge number of chemicals in my blood, I turn to my friend Eva Röse and ask if she would like to test her blood as well. She’s 35 years younger than me; surely she couldn’t have picked up as many chemicals as I have? Eva is pregnant at the time and has her baby while the film is being made.

Consulting a wide range of scientists from the United States, the UK, Canada, Germany, Switzerland, Spain, Finland, Denmark and Sweden, I seek answers: What problems can these chemicals cause? These are some of the world’s foremost experts, and they explain what we currently know about effects and risks, the cocktail effect, hormone disruptors and the vulnerability of unborn children.

As I considered the format for my film, I thought of Claude Lanzmann’s documentary Shoah, which is based solely on interviews. I decided to put my faith in the close-up, the candid testimony of the human face. Rather than travelling to developing nations and bringing home terrifying images, I chose a different path.

But why the title, Submission?

Over the years I have grown to realise how willing we humans are to submit to others’ terms. It’s a holdover from our earliest childhood. And commercial interests in society are quick to make use of it. This interests me from a philosophical viewpoint. Just as Nature’s Revenge showed that Mother Nature doesn’t take kindly to manipulation and strikes back at us, I now understand that humankind is prepared to submit to whatever consequences our manipulations of nature throw our way.

The American musician Adam Wiltzie from the band Stars of the Lid made the music. He calls the film “a horror movie for the 21st century”.

I am aware that this popular science essay film asks a lot of the audience, but like most of my other documentaries, Submission is, at the core, about what kind of society we want to live in.

This is the most important film I’ve ever made. Ever.

Stefan Jarl

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Tags: Chemicals, Children's Health, Environment, Environmental Illness, Indoor Pollution, Pollution, Research, Toxic, Video

$100K awarded to woman with chemical sensitivity denied proper accommodations at work

Posted on Mar 10, 2010 by Susie Collins in Blog, Disability Rights, MCS, Susie Collins, Worker's Rights

Woman with chemical sensitivity awarded $100K for being denied proper accommodations at work; her coworker’s perfume made it difficult for her to breathe.

Modern perfume contains known toxic chemicals that can cause serious cognitive and respiratory problems in people with chemical sensitivity.

On Point reports a Detroit city planner with an allergy to perfume is savoring the sweet smell of legal success after the city agreed to pay her $100,000 and be more sensitive to the chemically sensitive.

The agreement -– obtained by On Point through a public records act request — settled Susan McBride’s lawsuit under the Americans With Disabilities Act which alleged the City of Detroit failed to reasonably accommodate her allergy after she complained that a co-worker’s perfume made it difficult for her to breathe.

Some critics attacked McBride for being overly sensitive and abusing the court system. But many workplaces are now perfume-free and a judge in November 2008 denied the city’s motion to dismiss, ruling McBride could proceed with a disability claim “based on the major life activity of breathing.”

As part of the settlement, which the parties signed last month, the city will post a notice on bulletin boards in its offices announcing that “Our goal is to be sensitive to employees with perfume and chemical sensitivities”

Let’s hope it sets precedent for future cases. If you have Multiple Chemical Sensitivity and are having trouble with your employer giving you proper accommodations, you might like to share the agreement with them. This is an access issue, the same as any other disability protected under the ADA.

Photo credit

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Tags: Air, Chemicals, Environmental Illness, Fragrance, Law, MCS, Multiple Chemical Sensitivity, Perfume, Personal Care, Policy, Sick Building, Stink, Toxic, Work

The risk of developing Multiple Chemical Sensitivity from exposure to photocopiers and laser printers

Posted on Feb 13, 2010 by Susie Collins in Blog, Guest Bloggers, MCS, Worker's Rights

Some persons suffering from Multiple Chemical Sensitivity may have developed their conditions or worsened them due to exposures to the toxic chemicals given off by photocopiers and laser printers in their office jobs.

By guestblogger M.R.E.

The following is information for the readers of The Canary Report concerning potential risks of exposure to photocopiers and laser printers. I have suffered a devastating respiratory condition from exposure to these types of machines, and so I am trying to raise awareness about this health hazard to hopefully receive feedback and get in touch with other persons who suffer the same.

Due to exposure to photocopiers and laser printers, I have suffered a devastating respiratory condition which produces in an extreme degree: difficulty for breathing, chest pain and oppression, fatigue, cough, mucosal dryness, inability to sneeze and plenty of disturbances in the throat, nose, mouth, eyes, skin, stomach and other systems plus an extreme, lasting intolerance to all chemicals in the air. After a lot of troubles it was diagnosed in two university hospitals as non-specific bronchial hyper-reactivity and Multiple Chemical Sensitivity (MCS). The syndrome was caused by the irritant vapors released by a photocopier and a laser printer in my jobs and this appears very obvious from the full details of my story, too long for this page. Although my illness was initiated within 24 hours of intense exposure to these gases, it has not been officially recognized as occupational for any purpose. As many other sufferers with MCS, I have lived a nightmare of sickness and social neglect, but thanks to my family, who financially and psychologically supported me, I did not fall into marginality and eventual tragedy.

From my own experience of nearly three decades with this problem I see that the following points should be carefully taken into account:

[...]

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Tags: Air, Asthma, Chemicals, Environmental Illness, Indoor Pollution, MCS, Multiple Chemical Sensitivity, Products, Research, Sick Building, Toxic, Work