Tag Archives: Environmental Health

MCS and the search for a safe community

Posted on May 24, 2010 by Susie Collins in Blog, Healthy Living, Keith Carlson, MCS

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Based on our research and experience thus far, our conclusion is that intentional communities are not a safe bet for those with MCS and environmental illnesses, and the learning curve remains steep even for those who claim to be living a sustainable and healthy lifestyle.

By contributor Keith Carlson, RN, and Mary Rives.

Keith

In honor of MCS Awareness Month, my wife, Mary Rives, and I are posting this co-written article in order to share more deeply regarding one of the most significant reasons that we undertook our current journey around the country.

Because we both live with Multiple Chemical Sensitivity (MCS), finding a safe place to call home is paramount to us, and those who have MCS understand what it’s like to live like a “canary in the coal mine” in a world saturated with substances that undermine our health and impair our ability to function effectively.

Mary

With recent reports showing that even ADHD may be linked to pesticide use, there is a crucial necessity for us to be more public about our MCS, our search for safe housing, and the need for greater awareness about the effects of chemicals, pesticides, and manufactured fragrances on the health of humans and the environment. That said, many hospitals and other health care facilities are now becoming fragrance-free in an effort to support the health of patients, thus awareness is indeed growing about this important public (and personal) health issue.

We offer this article as a missive of support and hope to other canaries, as well as a plea to those without MCS—especially intentional communities—to more deeply understand our plight.

~Keith Carlson and Mary Rives

~~~

When it comes to finding safe housing, everyone with Multiple Chemical Sensitivity (MCS) will agree that this is one of the most daunting challenges of living with this most highly inconvenient and disheartening medical condition.

After living in New England for 20 years and becoming chemically injured in the process (most likely due to hidden mold in our home), it was no longer safe for us to live in our beloved neighborhood or continue to work in our meaningful jobs.

Our lovely arboreal homeowners’ association provided what at first appeared to be a healthy sanctuary for our family of three, but our blissful existence was often impeded by the imposition of a variety of common household toxins, including the fumes of lighter fluid, charcoal, dryer sheets, and lawnmower and vehicle exhaust. Lying in hammocks or eating home-cooked meals on our custom-made screened-in porch, we were often driven indoors by clouds of the aforementioned toxins filtering through the forest and onto our property.

When exposed to various chemicals and environmental toxins, we each experience a similar yet somewhat different constellation of symptoms, including headache, confusion, sore throat, irritability, asthma, hives, joint pain, muscle pain, and burning eyes. When mold was discovered in our attic after our house was put on the market, the potential culprit of our mutual MCS only added to our intense desire and need for a safe refuge.

In our workplaces which had fragrance-free policies, we were both exposed to environmental insults that exacerbated our condition and underscored the need to radically change our lives. Policies are virtually ineffective without enforcement, often driving wedges between people of varying cultures and levels of acceptance, support and awareness. The commitment to educating others can be exhausting, and workplace exposures impair job performance and strain professional relationships. Thus, we canaries often find ourselves frequently leaving otherwise satisfying and meaningful jobs in order to preserve our health and sanity.

Having lived in an intentional community early in our relationship, we decided that ecologically-minded intentional communities with a focus and commitment to sustainability would offer the greatest potential for finding a safe home. We hoped that this form of community would use earth-friendly, biodegradable and non-toxic products in keeping with that vision of sustainable living, and provide for us a safe place to live our lives in peace and health.

Hitting the proverbial road in a 29-foot mobile home, we began to scour the country for an intentional community or eco-village that offered an opportunity for healthy living. Traversing the East Coast, Deep South, Gulf Coast and Southwestern United States, we visited over two-dozen intentional communities in more than twenty states over the course of seven months.

Many of these communities profess to live close to the earth by using sustainable building and permaculture techniques, renewable energy sources, organic gardening, and other well-meaning practices. In our naivete, we did indeed assume that “sustainable living” would include the use of earth-friendly and non-toxic products, but we’ve sadly found that many such communities simply reach for the cheapest common denominator, with Tide, Bounce, Palmolive, Cascade and other products being the easy mainstream fix.

Our disappointment and disillusionment were great when many visits to such communities revealed that people were often unwilling to “walk the talk” when it came to using safe and healthy products. As to the issue of being fragrance-free and MCS-friendly, most communities appeared oblivious at best, much to our dismay.

Earthaven Ecovillage in Asheville, North Carolina, Sunflower River Community in Albuquerque, New Mexico and The Commons on the Alameda Cohousing Community in Santa Fe, New Mexico are the three communities that we have found in our travels to best embody earth-friendliness and consideration for those living with MCS.

While people at Earthaven do indeed burn a great deal of wood for winter heat and state that they are not well-equipped to have people with severe MCS join them, many of the residents appear to embrace true sustainability. Sunflower River has no openings for new members at this time but they are a growing community that truly walks their talk. Twins Oaks and Acorn communities in Southern Virginia are runners up, but they use lavender scented natural detergent which neither of us can tolerate without becoming symptomatic.

Although the numbers are few (and we have only visited a fraction of the intentional communities in the United States), we are grateful to have found a few that seem to understand how important it is to use biodegradable products that are healthy and earth-friendly. And of these few, the Commons on the Alameda is the only one who uses all fragrance-free products!

We are planning to live at The Commons this summer in order to test the waters and see how their experiment in MCS-friendly community is going. The Commons is an established cohousing community with 28 homes and a common house located in Santa Fe, New Mexico.

The Commons on the Alameda Cohousing Community in Santa Fe is an extremely MCS-friendly community that has adopted a strict fragrance-free policy in an effort to create a safe haven for residents with environmental illness. Championed by an medical doctor specializing in environmental medicine who lives at the community, the shared spaces at The Commons are for all intents and purposes fragrance-free, and guests and residents are urged to comply with the policies. We are actually planning to live at The Commons this summer in order to test the waters and see how their experiment in MCS-friendly community is going, bringing with us great hopes that we will find it to be a safe haven where we can, at long last, feel comfortable and at peace.

For canaries considering looking into intentional community as a possible source of safe housing, we would like to warn those with MCS that even eco-villages and communities that espouse sustainable living as a way of life so often overlook the very products that people put on their bodies, into the water, and onto the ground. As many of us already know, mainstream products are often cheap, readily accessible, and have brand recognition that even the most alternative individuals cannot resist. The tendency (can we even say addiction?) to purchase such products is rampant, and even those who live in intentional communities often choose to drive to Wal-Mart and buy whatever cleaning products are on sale. We understand that communitarians also have to make ends meet, but when one’s habits as a consumer fly in the face of one’s proclaimed ecological lifestyle, questions are raised as to whether that community or individual is truly thinking clearly about their choices as a consumer and their commitment to the earth (and their health).

Based on our research and experience thus far, our conclusion is that intentional communities are not a safe bet for those with MCS and environmental illnesses, and the learning curve remains steep even for those who claim to be living a sustainable and healthy lifestyle.

Meanwhile, many of our fellow canaries live with severe MCS which prevents them from exploratory adventures like the one we’ve undertaken. They are unable to risk the dangers–and expenses–of the unknown, despite the fact that they have so much to contribute. Living with MCS sadly often necessitates social isolation in order to minimize symptoms which only worsen with subsequent exposures to the most basic of chemicals. Adding to the isolation are the common financial hardships caused by the medical need to let go of jobs in toxic work places. Employees with MCS are also frequently discriminated against by employers who are unwilling to make reasonable accommodations, despite the fact that MCS is recognized as a disability by the Americans with Disabilities Act.

Having MCS inconveniently interrupted our careers and engendered enormous out-of-pocket medical expenses in order to prevent our illness from worsening. Even with good health insurance, access to treatment has been very expensive and limited, and the fact that the AMA refuses to recognize MCS as a physiological illness makes finding sympathetic medical providers an additional challenge. Avoidance is the best medicine, thus our radical lifestyle change and quest for safe community living.

Our hope for the future is that more and more intentional communities will realize the importance of the need for safe housing, including across-the-board use of fragrance-free, environmentally friendly products. May they become safe havens for canaries of the coal-mine while taking their commitment to the earth and her inhabitants even further. Meanwhile, perhaps a few MCS communities will even be born from our collective desire for a safe place to rest our weary heads!

We remain hopeful that we will find a place to call home for the long-term where we can live safely and in better health. We also remain realistic that uphill battles and further education will be needed for those with whom we share living and breathing space, perhaps for the rest of our lives. For now, the two of us will continue to explore whether intentional community will fit thebill when it comes to healthy living as we land in our temporary nest with great hopes for a healthy future for all.

~~~

This post was originally published on my blog Digital Doorway, a digital venue for creative expression, nursing adventures, reflections, thoughtful reverie, thoughtless repose, and other flotsam and jetsam. You can also visit me at Mary and Keith’s Excellent Adventure, where my wife and I blog about living full-time in our new RV, traveling the highways and byways of America, visiting intentional communities, and bringing Laughter Yoga and the benefits of health and wellness coaching to new and old friends along the way! ~Keith

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This is progress!

Posted on May 12, 2010 by Susie Collins in Blog, Guest Bloggers, Healthy Living, MCS

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I am about to talk about the most hotly debated and taboo topic in the MCS crowd– and that is about healing and possibly being cured. Since I am always on a steady upswing and will never give up, I thought I would just jot down the things I felt were helpful to me– no matter how controversial they may be.

By guestblogger Leslie Richard.

I am trying to learn to drive a car again after five years of being house bound!

People who have never experienced a chemical injury or some kind of health breakdown that causes a person to get Multiple Chemical Sensitivities may find this post a little weird… So be forewarned, let your judgments and confusion take a nap while ya keep on reading.

For those of you who have MCS, ya might have to let your judgments go, too, cause I am about to talk about the most hotly debated and taboo topic in the MCS crowd– and that is about healing & possibly being cured. Yeah, I said the “C” word, and now I am gonna tell you what I really think…

Some of us who developed MCS know exactly what happened, you might have been exposed to chemical in your workplace and then watched your health take a spiral into a housebound hell, you may have been renovating your home and didn’t recover, you may have been a Gulf War veteran who was lied to until recently about pills you were administered, or a 911 victim… or maybe an average person like me who was exposed to various things over time and happen to have an auto immune disease that caused enough damage to make the normal body functions take a dive six feet under.

However you got to the stage of MCS, no matter how hard you had to fight to be understood and never truly were by everyone… there is also this point of acceptance and letting go– letting the label of being “sensitive” be as big a deal as having brown hair.

Over the years, my symptoms of MCS kinda took up and down dives, with being only generally sick when going into K-mart (who isn’t sick in that place?), or when exposed directly to fresh paint, or loud amounts of perfume. These things bordered on normal, and didn’t stop me from at least hanging out at thrift stores. But nearly five years ago I got pregnant, and very sick– when I lost the baby my mild MCS turned into raging impossible to deal with every smell makes me wanna pass out and kill people so I must hide in the woods MCS. It was so intolerable that I could no longer drive without having seizures, I could not stand for my X-boyfriend to come home from the store and get near me with his smelly clothes, I could not hang out with or visit any other humans, or go anywhere in public. After nearly a year of this kind of hell-ish reclusive life, I ventured out…

I didn’t go sticking my head inside of paint cans or huff glue, but I decided if the world was going to kill me, then Fuck It! Let it kill me while I am living my life and doing what I want–

This is the healthier me AT A PARTY recently that included a lot of people, bonfire, some people smoking.

I started off slow and made small goals. Each time I reached a small goal (like buy a lottery ticket at a gas station two blocks away), I would set the bar higher and further ’til I was working on a more functional level. Four years later… look at the picture, that is me AT A PARTY that included a lot of people, bonfire, some people smoking, etc…

Two things I noticed over these years:

1. MCS is not in your head, people react to nasty shit in our environment as a natural part of our body’s function.

2. I (my body) was so used to reacting, there was some auto-anxiety involved… not “in my head” but anxiety that was learned and out of control. Anxiety bad enough to be confused – like was it a symptom or anxiety causes me discomfort?

The reason I bring this up is ’cause there are a few things I have done over the years that I believe have helped me improve. I am not cured, but since I am always on a steady upswing and will never give up, I thought I would just jot down the things I felt were helpful to me– no matter how controversial they may be (and knowing everyone’s body will need their own personal combo of things to heal!)

1. I got on the macrobiotic diet. I did not eat bad before that, in fact I have eaten all organic & whole foods long before health problems, but this diet has some really helpful ways to keep your foods appropriate for your ailments, the seasons, your body temperature, and healing in general. Over time I branched out and added back in some whole foods not strictly on this diet, but ones that help improve my energy and give me a greater variety of nutrients.

2. I got outta my head. This one will undoubtedly make some people with MCS upset ’cause it’s not a head disease, but with any health problems sometimes the best thing we can do is get the heck outta our own way and STOP for da’ love of gawd thinking about sickness, what causes sickness, how we got sick, being mad we got sick, blaming the world we got sick… etc. (you know the thoughts I am talking about!). I had to start thinking about life and my dreams, and not about “sickness” stopping my life.

3. Risks. I am not recommending anyone with MCS do anything to put themselves in harms way, but for me I had to take some risks to find out what my real limits were. With all the other helpful things I was doing for my health (clean house, clean diet, homeopathic detox, being nice to myself) there would come a time when new limits needed to be tested if I was to ever be able to branch out and do anything beyond my own backyard. Each time I took a successful risk (no matter how many were unsuccessful) I was able to do that much more and that did wonders for my mental health, too.

4. Homeopathic/Medicinal stuff. I tried about a billion things, but the only stuff I used that worked for helping detox my body in a gentle way were homeopathic pills for kids (Newton brand) and eating shiitake mushrooms (takes out heavy metal and junk real gentle, easy and tastes good, too!). I don’t like taking pills of any kind, and I did best when I stopped taking all the pills recommended to me and just took the one homeopathic or nothing at all.

5. I got a therapist! Hell yeah I did, because being sick is not easy to deal with and it turned out I learned amazing skills and coping methods that reduced tons of stress in my life and I only had to go for a short period of time before I learned to support myself emotionally and forgive and live again. What I learned in therapy about how to deal with being sick, rolled over into every relationship for the better.

6. Exercise!! No matter what, even if it’s hard and makes ya fatigued. I did this even when bed ridden and at my worst, getting the body moving and the blood circulating is your ticket to wellness.

7. Nice Home Environment. It never needed to be the Taj Mahal for MCSers, just had to not be freshly painted or super disgusting– I moved around more times than I can count on two hands and generally my house plants cleaned the air good enough each time. The really important part for me was not living right in a city (too much pollution), to have fresh air outside, to open my windows, to walk in the woods, to grow my own food, and have animals around me.

8. Brain re-training. I KNOW, this is the one people in the MCS community have been either seething with hate over, praising, arguing, or banning… but I tried it. Let me just tell ya’ll, I didn’t even watch all the CD’s for the Gupta Program but only up until the specific exercise to re-train your brain and I started doing the exercise immediately everyday. Did I do it like 20 times a day like he suggests? NO way maybe like once a day… nor did I do any of his meditations and all those suggestions on how to breathe ’cause I already had enough self help like that in my bag of tricks. But when I had a majorly bad thought about being sick, or bad symptoms, I did the exercise and then moved on. Brain re-training helped me, I can’t put my finger on it but once I started thinking in a positive direction and got my brain outta auto-sick mind, my bravery and ability to do things doubled up ten fold times 100!

This method has helped me tons with my newest challenge, and that is I am trying to learn to drive a car again after five years of being house bound! (See pic at top!)

I remember when I could not breathe in a small enclosed space with any other human unless they were totally decontaminated, chem free … but this picture below is me and my dad recently in my bathroom hanging a mirror together and the only reason my face looks like it does is cause he was calling the mirror a “f-en bastard” and scaring me with his perfectionism. :)

My Dad and me hanging a mirror together.

I am not in perfect health, I still have trouble breathing in certain places, I still feel ill to smell the fragrance detergents, I still know I am not reliable or well enough to go out and get a regular job… BUT I am much more functional. Functional enough to begin enjoying my life again and I wanted to put this out into the world– for those with MCS or any disease do not give up, ever! The body always is working towards healing itself, the body always wants to get better and so do you… do not give up on the miracle of healing– even if it’s slow and takes many years. Just know none of ya’ll are alone, I am over here at my little cabin in the woods believing everyday that we all can be healthy– no matter what anyone says!

Xoxoxo

~~~

This post was originally published at The Oko Box, where Leslie blogs an eco-friendly interactive commentary on organic clothing, DIY, environment, pollution, health, organic food, organic farming and wildlife adventures.

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Multiple Chemical Sensitivity: The importance of reducing the toxic load

Posted on May 07, 2010 by Susie Collins in Blog, Eva Caballé, MCS, Media/Videos

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I didn’t know that air fresheners and laundry softeners have carcinogenic ingredients. The manufacturers hide all this information because they want us to be unsuspecting consumers who buy products without questioning the ingredients. But there are natural and healthier choices, and in most of the cases they aren’t more expensive.

By contributor Eva Caballé, Spain.

(Editor’s Note: Please help me welcome Eva Caballé as a regular contributor at The Canary Report! Eva’s story about her life with Multiple Chemical Sensitivity has been featured on TCR many times since last summer, and she started guestblogging here in February. I asked her to come join us as a regular contributor, and to my delight she’s said yes! She’ll blog here at The Canary Report on Multiple Chemical Sensitivity, disability rights, social justice, the state of MCS recognition in Spain, and give you tips about living a nontoxic life. You can read her full bio here. Eva makes her contributor’s debut with a video on the importance of reducing the toxic load in your life. The video was first aired at a conference in Spain on healthy cosmetics. Welcome, Eva! Aloha, Susie)

Eva Caballé

Hello, my name is Eva Caballé. I’m an economist from Barcelona, Spain, and I’ve lived with Multiple Chemical Sensitivity for four years, although I was diagnosed only two years ago. I write NO FUN, a Spanish blog about MCS and Chronic Fatigue Syndrome, with information and advice for people who are sick or who want to live a healthier life free of toxics. My blog includes an English section. And I have written a book Desaparecida: Una vida rota por la Sensibilidad Química Múltiple (Missing: A life broken by Multiple Chemical Sensitivity) that was published in Spanish last year by the publisher El Viejo Topo .

First of all, I want to thank Silvia Ferrer for inviting me to this conference about healthy cosmetic to talk about MCS, although I have had to record my conference in this video, because my illness doesn’t allow me to leave my house.

Maybe some of you haven’t heard about Multiple Chemical Sensitivity. MCS is an acquired chronic illness which manifests with multisystemic symptoms as a reaction to very small exposures to toxic chemical products, meaning normal everyday chemicals but unnecessary ones like perfumes, air fresheners and laundry softeners.

MCS is a syndrome with four grades of severity, so not all of us who are sick suffer the same level of disability and isolation. Unfortunately, I have the highest severity and because of MCS I have developed other illnesses that make me live completely isolated, without leaving my house, and right now, not even leaving my bed.

The symptoms are chronic and they can become acute when we are exposed to chemical products. Symptoms are different depending on the sufferer, and in my case include dyspnea, tachycardia, dizziness and extreme fatigue. This is the reason why we must avoid contact with any chemical product.

There are two ways of developing MCS: from one single exposure to toxics at a high dose (fumigation, for example) or by many exposures to small amounts over the years, which is my case.

Over the years, our body accumulates chemical substances which circulate in our environment without any controls, in the food we eat, in the water we drink, in the air we breathe, in our beauty products, etc., until the toxic load is unbearable and we end up getting sick, which according to our genetic make-up, it could end up being MCS or other environmental illness like cancer, asthma, and allergies.

If you start noticing unbearable chemicals which you did not notice before or you stop tolerating alcohol or some food, you may be developing MCS. If a perfume gives you headache, if some chemicals give you dizziness or nausea, you may be part of the 12% of people who have chemical sensitivities in a mild degree.

Since my MCS started, before I got the right diagnosis, I had to make changes at home, because the laundry detergent, the toothpaste or for example the shower gel suffocated me. My body guided me to eliminate all the products that were intoxicating me. In spite of not knowing the name of my illness, I started to look for alternatives to substitute for all these toxic products. Two years later, when I knew that I had MCS and that I had to avoid all the chemical products, I realized that my body had led me on the right track.

Then I created the blog NO FUN, first of all to spread a video about MCS that I recorded at home for a TV program, and after that I started to share all that I had learned with other people who were sick and anyone who wanted to live a healthier life free of toxics.

I also have allergies since I was a child, but nobody warned me that I was in a risk group to develop MCS. If I was aware of this, I would have changed my habits and I would have used the products that I use now. I also didn’t know that most deodorants are toxic and there are a lot of studies that link some ingredients with breast cancer.

I didn’t know either that air fresheners and laundry softeners have carcinogenic ingredients. The manufacturers hide all this information because they want us to be unsuspecting consumers who buy products without questioning the ingredients. But there are natural and healthier choices, and in most of the cases they aren’t more expensive.

Each day, there are more children with allergies, asthma, with celiac disease, dermatitis, even cancer. MCS is growing rapidly and also affects younger people, even children. This horrifies me and I am ashamed to live in a world where economic interests are put before health, where they let us get sick and then they abandon us with no help.

I decided to write a book with my history in part to denounce all of this, because I don’t want anybody else get sick when this can be avoided. While the health authorities do nothing, everyone has the option to change their way of life, to stop using these toxic products and to start using ecological products, which are respectful to our bodies and the environment.

I only wish that my experience is useful in preventing others from getting ill.

~~~

Eva Caballé blogs at NO FUN.

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The President’s Cancer Panel releases report: We must eliminate environmental carcinogens from our workplaces, schools, and homes.

Posted on May 06, 2010 by Susie Collins in Blog, Environment, Government Regulation, Policy, Research, Susie Collins

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Report to the President concludes that the nation needs a comprehensive, cohesive policy agenda regarding environmental contaminants and protection of human health. The main problem they say? Toxic chemicals in the environment.

The President's Cancer Panel releases their 2008-2009 report, "Reducing Environmental Cancer Risk: What We Can Do Now." The report emphasizes prevention rather than after-the-fact intervention.

The U.S. President’s Cancer Panel released their 2008-2009 report, Reducing Environmental Cancer Risk: What We Can Do Now. As a person with Multiple Chemical Sensitivity who has survived breast cancer, I’m pleased to see the panel addressed myriad health problems associated with toxic chemicals in the marketplace; the panel extended it’s opinion beyond carcinogens to include “other toxins” as well such as endocrine disruptors.

From the report’s introduction:

The Administration’s commitment to the cancer community and recent focus on critically needed reform of the Toxic Substances Control Act is praiseworthy. However, our Nation still has much work ahead to identify the many existing but unrecognized environmental carcinogens and eliminate those that are known from our workplaces, schools, and homes [emphasis added]. [...]

The Panel was particularly concerned to find that the true burden of environmentally induced cancer has been grossly underestimated. With nearly 80,000 chemicals on the market in the United States, many of which are used by millions of Americans in their daily lives and are un- or understudied and largely unregulated, exposure to potential environmental carcinogens is widespread. [...]

The American people—even before they are born—are bombarded continually with myriad combinations of these dangerous exposures. The Panel urges you most strongly to use the power of your office to remove the carcinogens and other toxins from our food, water, and air that needlessly increase health care costs, cripple our Nation’s productivity, and devastate American lives.

I’m really impressed with the report’s emphasis on prevention rather than after-the-fact intervention. The report also emphasizes the fact that most people are unaware “that children are far more vulnerable to environmental toxins and radiation than adults.” They recommend that this perpetual state of ignorance be corrected by increasing efforts “to inform the public of such harmful exposures and how to prevent them.” Doesn’t that sound just like what most of us with MCS do on a regular basis? It’s so nice to see this prestigious panel catch up with us!

I also was very impressed with their conclusion, where they end with an emphasis on prevention:

The Nation Needs a Comprehensive, Cohesive Policy Agenda Regarding Environmental Contaminants and Protection of Human Health.

Environmental health, including cancer risk, has been largely excluded from overall national policy on protecting and improving the health of Americans. It is more effective to prevent disease than to treat it, but cancer prevention efforts have focused narrowly on smoking, other lifestyle behaviors, and chemopreventive interventions. Scientific evidence on individual and multiple environmental exposure effects on disease initiation and outcomes, and consequent health system and societal costs are not being adequately integrated into national policy decisions and strategies for disease prevention, health care access, and health system reform.

Use this document to your full advantage. Share it with employers, family, friends, members of your church, administrators at your kid’s schools, and other people that need an education about the risks of toxic chemicals in everyday life.

What do I keep telling you? Trends are moving in our direction.

Here’s the link to the full report.

Here’s a link to an article about the report from Environmental Health News. Thanks, Roslyn!

Here’s a link to column about the report by Nicholas Kristof of the New York Times.

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US Centers for Disease Control and Prevention issues indoor air quality policy for all CDC offices nationwide

Posted on Apr 07, 2010 by Susie Collins in Blog, Government Regulation, MCS, Policy, Susie Collins, Worker's Rights

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This is arguably the strongest and most important toxic chemical-free and fragrance-free policy in existence for the workplace.

CDC′s Roybal campus in Atlanta, GA.

The US Centers for Disease Control and Prevention, a federal agency under the Department of Health and Human Services, recently issued a policy on indoor air quality that will affect all CDC offices (owned, leased and rented) and more than 15,000 employees nationwide. Among a host of indoor air quality standards, the policy includes specific guidelines restricting the use of fragrance in cleaning and personal care products.

Housekeeping Guidelines

CDC will ensure that products used in the workplace, such as soaps, cleaning products, paints, etc. are safe and odor-free or emit low levels of volatile organic compounds (VOCs) to the fullest extent feasible. Only green cleaning products shall be specified and used within CDC facilities and leased spaces unless otherwise approved by the Office of Health and Safety. [...]

Non-Permissible Products

Scented or fragranced products are prohibited at all times in all interior space owned, rented, or leased by CDC. This includes the use of:
• Incense, candles, or reed diffusers
• Fragrance-emitting devices of any kind
• Wall-mounted devices, similar to fragrance-emitting devices, that operate automatically or by pushing a button to dispense deodorizers or disinfectants
• Potpourri
• Plug-in or spray air fresheners
• Urinal or toilet blocks
• Other fragranced deodorizer/re-odorizer products

Personal care products (e.g. colognes, perfumes, essential oils, scented skin and hair products) should not be applied at or near actual workstations, restrooms, or anywhere in CDC owned or leased buildings.

In addition, CDC encourages employees to be as fragrance-free as possible when they arrive in the workplace. Fragrance is not appropriate for a professional work environment, and the use of some products with fragrance may be detrimental to the health of workers with chemical sensitivities, allergies, asthma, and chronic headaches/migraines.

Employees should avoid using scented detergents and fabric softeners on clothes worn to the office. Many fragrance-free personal care and laundry products are easily available and provide safer alternatives.

Further, the policy extends to enforcement. Within the document itself is clearly stated the process by which an employee may file a report about air quality problems through a questionnaire, and further still, who is responsible for overseeing the investigation:

Building occupants who experience irritation or symptoms that may be related to the quality of indoor air should notify their supervisors, and the OHS or local Safety Officer to initiate a complaint. BFO must also be contacted upon initiation of a complaint, to identify and/or review any potential structural, maintenance, or heating, ventilating or air conditioning (HVAC) issues. Building occupants must also complete the Indoor Air Quality Questionnaire (see Attachment B) in order to properly document the complaint. Each IEQ complaint poses a unique set of circumstances that will determine the investigative procedures used to resolve each IEQ concerns.

Office of Health and Safety/Designated Safety Officer Administers the Indoor Environmental Quality Program and serves as the primary coordinator and investigator for reported incidents involving IEQ hazards or conditions; educates CDC supervisors and workers; develops report findings and recommendations for corrective action; and reviews and updates to meet future needs and regulatory changes.

You’ll also be happy to see that there is a section on pest control. Although it’s not perfect, it’s far safer than the hazards many workers endure with ubiquitous application of hazardous pesticides, usually performed without notice: “Pest management, for both buildings and lawn care, will emphasize non-chemical management strategies whenever practical, and the least-toxic chemical controls when pesticides are needed. Integrated Pest Management practices must be utilized.”

Coming from the CDC, this is arguably the most important toxic chemical- and fragrance-free policy in existence for the workplace. In the words of former CDC director Dr. Julie Gerberding, the agency is charged with confronting “the challenges of 21st-century health threats.” It looks like the current CDC director, Dr. Thomas R. Frieden, believes this responsibility covers not only the general public, but CDC’s own employees and workplaces as well.

Creating nontoxic work environments is not just good for employees’ health, it’s good for the bottom line, too. Workers who are not being slowly poisoned by toxic chemicals on the job can think clearer, work more efficiently and be more productive. Employees who suffer toxic chemical sensitivity, asthma and other respiratory ailments will take less sick days. People who are prone to developing health problems triggered by toxic chemicals will be safer; in fact, everyone who works in CDC buildings will now be safer.

For those of you with Multiple Chemical Sensitivity who are currently battling it out with your employer over hazardous chemicals in your work environment, in addition to discussing your rights to safer accommodations under the Americans with Disabilities Act, you might want to print out this new CDC policy and give copies to your boss, your CEO, and your human resources director. Explain to them that the experts at CDC understand that indoor air quality is greatly compromised by a host of toxic chemicals, including those from cleaning products used by maintenance personnel and personal care products used by employees. Tell them that this recent CDC policy is indicative of the way trends are going, and any company getting on board now will be spared future costs caused by condoning an unsafe environment for employees.

This policy is incredibly good news– use the clout and expertise of this CDC policy to strengthen your arguments for a toxic chemical- and fragrance-free work environment.

Here’s the pdf of the policy.

Here’s the pdf of the questionnaire to be used when CDC employees file a complaint about air quality.

Thanks to Harry Clark for obtaining these documents from CDC and for sharing them so freely!

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Open tabs

Posted on Mar 21, 2010 by Susie Collins in Blog, Media/Videos, News, Susie Collins

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Reports and pages I’ve been exploring this weekend:

ABC reports the Military Admits Fault in Water Contamination: Soldiers at Camp Lejeune in the 1980s were exposed to chemicals in tap water.

For an inside look at the Camp Lejeune horror story, visit this website made by former residents called Camp Lejeune Toxic Water: The Few The Proud, The Forgotten.

I’m annoyed with the Environmental Protection Agency’s Evaluation of Pet Spot-On Products: Analysis and Mitigation Plan, just released. No mention of nontoxic alternatives, but I guess that’s not the topic.

The EPA also urges families to lock up household chemicals and pesticides. No mention about eliminating toxic chemicals from the home in the first place to remove the danger completely. Listen to this: “Leading causes of poisoning include cosmetics such as perfume and nail polish, deodorant and soap, household cleaning products and medications.” Did you know perfume, nail polish, deodorant and soap are LEADING causes of child poisoning? WAKE UP, PEOPLE! Get those toxic chemicals out of your house! Here’s the EPA’s page on Prevent Poisonings in Your Home; again no mention about elimination or alternatives.

I love Paul Tukey‘s blog SafeLawns.Blog. Paul is the founder of SafeLawns.org, a 501(c)(3) nonprofit foundation. He’s also executive producer of the award-winning documentary, A Chemical Reaction, which can be found at www.pfzmedia.com; the movie chronicles the origin of the anti-pesticide movement sweeping across Canada and into the United States.

Shine reports on the woman who was awarded $100K because her employer did not provide her proper accommodations under the Americans with Disabilities Act when her co-workers’ perfume and the office air fresheners made her ill. I’m disgusted at the media for the way this story’s been reported: I’ve read at least 50 reports on this story and not one has mentioned that perfume and air fresheners contain toxic chemicals and that it was the toxic chemicals that made the woman ill, not the “stink” or “chemical-smells.” I think this report here at The Ohio Employer’s Law Blog has the most interesting perspective I’ve read yet about the case:

The focus in ADA cases has shifted from the legal argument of whether an employee’s medical condition rises the level of an ADA-protected disability, to the factual issue of whether the employer reasonably accommodated that disability.

Dr. Andrew Weil answers a question about the use of clay treatment for healing fibromyalgia. Fibromyalgia is in the same group of illnesses as Multiple Chemical Sensitivity, Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, and Post-Traumatic Stress Disorder.

I was delighted to discover Annie Leonard’s blog The Story of Stuff Project. If you haven’t seen her Story of Stuff videos, you must!

Harrison Medical Center, Washington state, has a scent-free policy.

Nirvana Safe Haven has the most comprehensive list I have ever seen on scent-free organizations and policy. Good resources there for anyone trying to implement scent-free policy in churches, schools, public venues and more.

And the New York Times reports the Department of Agriculture said it would begin enforcing rules requiring the spot testing of organically grown foods for traces of pesticides, after an auditor exposed major gaps in federal oversight of the organic food industry.

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Open tabs

Posted on Feb 25, 2010 by Susie Collins in Blog, News, Susie Collins

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Every night when I turn off the computer, I have dozens of tabs open from all the sites I’ve explored during the day. In the first of a new regular series on The Canary Report called “Open Tabs,” I’d like to share some of the more interesting with you!

Every night when I go to turn off the computer, I have dozens of tabs open from all the sites I’ve explored during the day. Some links are emailed to me, some I pick up on Twitter and Facebook, some I get from peeps during chats on our network, some I find on my own. I thought it might be fun to share them with you from time to time: it will give you a glimpse into the roaming I do all day to satisfy my uncontrollable urge to stick my nose into absolutely everything.

Here are a few of the tabs that I’ve had open for the past few days:

A sign every canary will love.

Someone sent me a link to this awesome sign, “Environmentally Sensitive Area.”

My cat’s been very sick for months, unable to eat without throwing up. We put her through myriad tests, which all came up with nothing. Then, I remembered my holistic vet from when I lived on Kauai, Dr. Ihor Basko. Ihor’s specialty is homemade diet and Chinese medicine, including acupuncture and medicines. From his website: “Dr. Basko provides high quality, caring, holistic veterinarian services and healing acupuncture services on the Islands of Kauai and Oahu. Dr. Basko also provides guidance to pet owners world-wide for preventing disease and supporting the well-being of their pets through telephone consultations, a weekly radio show and through products and resources available through this website.” I filled out an online questionnaire, sent it off along with all the test results, and within five minutes on the phone, Dr. Basko had the problem diagnosed as gall bladder problems. He prescribed a special diet and some Chinese medicine, and after only a couple of days, my cat was doing almost 100% better! We are in week two of the Basko Protocol and she’s getting stronger every day. Thank you, Dr. Basko!

[...]

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Multiple Chemical Sensitivity associations in Spain meet with Ministry of Health officials

Posted on Feb 05, 2010 by Susie Collins in Blog, Disability Rights, Eva Caballé, Government Regulation, Guest Bloggers, MCS, Social Justice

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Eva Caballé reports on the meeting between Multiple Chemical Sensitivity associations and Ministry of Health officals in Spain, Feb. 4, 2010

Translated from Spanish by Eva Caballé

On February 4th 2010 at 12:00h has been held the meeting with Ministry of Health to state the situation of Multiple Chemical Sensitivity sufferers in Spain.

Mr José Martínez Olmos, Secretary General of the Ministry of Health, Mr Alberto Infante Campos, General Director of Professional Planning, Cohesion of SNS and High Inspection and Mr Francisco Valero Bonilla have attended to the meeting representing the Ministry of Health. One person by almost each MCS association has attended to the meeting and also Jaume Cortés, lawyer of Colectivo Ronda, and Dr. Pablo Arnold, immunologist specialized in MCS.

• ACAF: Cristina Montané
• AFCISQUIM: María Roldán
• Alas de Mariposa- SQM: Tránsito Rodríguez
• ALTEA – SQM: Cristobalina Bejarano
• APQUIRA: Mª Carmen Gómez de Bonilla
• AQUA: Mario Arias
• ASQUIFYDE: Francisca Gutiérrez
• AVASFASEM-AVASQ: Francisca García
• ENA: Laura Domínguez
• MERCURIADOS: Mª Carmen Miravete
• Plataforma Estatal Contra la Contaminación Ambiental: Minerva Palomar
• PLATAFORMA PARA LA FM ,SFC, SQM, reivindicación de derechos, Asociación Nacional: Elena Navarro

A petitions document done by MCS associations under David Palma coordination has been submitted. This document has been signed by:

• ABAF: Margarita Pascual
• ACAF: Maite Ribera
• AFCISQUIM: María Roldán
• Alas de Mariposa- SQM: Irene Escudero
• ALTEA – SQM: Cristobalina Bejarano
• APQUIRA: Mª Carmen Gómez de Bonilla
• AQUA: Mario Arias
• ASQUIFYDE: Francisca Gutiérrez
• AVASFASEM-AVASQ: Francisca García
• ENA: Rosa de Gabriel
• MERCURIADOS: Servando Pérez
• Plataforma Estatal Contra la Contaminación Ambiental: Minerva Palomar
• PLATAFORMA PARA LA FM ,SFC, SQM, reivindicación de derechos, Asociación Nacional: Elena Navarro
• Eva Caballé

Also a copy of Desaparecida: Una vida rota por la Sensibilidad Química Múltiple (Missing: A life broken by Multiple Chemical Sensitivities) has been hand delivered on behalf of Eva Caballé, who couldn’t attend to the meeting, as an example of what MCS sufferers have to go through in Spain.

The meeting with Ministry of Health has meant an agreement on minimum standards by the Ministry, but a big hope for all MCS sufferers.

Representatives of Ministry of Health have committed to contact MCS associations within 2 weeks to jointly agree on experts to form a Scientific Committee to create a document of consensus on the MCS. They have stated that this is the first step to make possible the inclusion of the MCS in ICD-10, i.e. its official recognition as disease in Spain. They have demonstrated that later there would be necessary to start creating the protocols.

All people who have been part of this process are thrilled by the result of the meeting, because doors have opened us to obtain the recognition of the Multiple Chemical Sensitivity in Spain and to achieve that MCS sufferers have the same rights as the other chronically ill people.

Link

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Short film: The People’s Grocery

Posted on Jan 29, 2010 by Susie Collins in Blog, Food, Media/Videos, Organic Gardening, Susie Collins

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Food justice: The People’s Grocery in West Oakland is an inspiration to communities everywhere about the importance of a healthy diet and about knowing where your food comes from. Director of the project Brahm Ahmadi is a hero!

In West Oakland, California, where liquor stores have replaced markets, People’s Grocery is creating a healthy alternative, offering access to organic produce. Through urban gardens and local farms, People’s Grocery supports a culture based on connection to the land, sustainable agricultural practices, and regenerating community.

Brahm Ahmadi is the co-founder and executive director of People’s Grocery. He has a B.A. in Sociology from the University of California and is an MBA candidate at the Presidio School of Management. Brahm combines social enterprise, cooperative economics, urban agriculture, public education and youth development to build healthy and stable inner city communities. He is also Executive Director of the North Oakland Land Trust, which preserves properties in North Oakland for the exclusive purpose of community gardening.

Link (A great site with oodles of online films to watch!)

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Poster for fragrance-free hospital care

Posted on Jan 26, 2010 by Susie Collins in Blog, Disability Rights, MCS, Susie Collins

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This poster was designed as a public service project for patients requiring in-hospital care at hospitals that are still lacking a proper fragrance-free policy for the staff.

The poster comes in two versions: one for Multiple Chemical Sensitivity and one for Severe Allergic Asthma. Click here to download either one in print resolution.

I think the posters are FAB, but I knock off a couple points for using the word “allergen” in the MCS poster. As we all know, MCS is not an allergy, it does not have any of the physiological markers of an allergy. But that criticism aside, this poster rocks. I especially love the part where it says, “Patient is not a Fragrance Crash Test Dummy. Don’t just ‘come & see if it affects the patient.’”

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More blogging canaries

Posted on Jan 26, 2010 by Susie Collins in Blog, MCS, Susie Collins

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A couple of blogs came up on my radar this week that I wanted to share with you.

Healthologist & well seasoned Nurse. Out of the box practical thinker with common sense. Fabric Artist – Quilter. Problem Solver.

My first find is Kathy AK’s Blog at Open Salon. Kathy is a new member of The Canary Report community, and among her topics at Open Salon, she blogs about Multiple Chemical Sensitivity. In the post Visiting someone with Multiple Chemical Sensitivity, she writes:

There are not any products that I am not neurologically reactive to. It is just a matter as to how reactive or sensitive to them I am and how ill a specific product will make me.

So, please leave them all at home.

Those “all natural” fragranced products are not safe around me either. While some products are worse than others, all WILL make me sick to some degree, probably too sick for you to even come into my home or to enjoy your company.

A nurse with over 25 years experience (and a quilter to boot), Kathy’s also encouraged her readers to Make the connection — Chemicals & Fragrances make you sick, and asked them to consider When Scented cleaners do not make good Cents.

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Sundog –noun 1. parhelion. 2. a small or incomplete rainbow.

I also found Sundog Tales by Lisa, who describes herself as “a survivor of the devastation multiple chemical sensitivity (MCS) and chronic fatigue syndrome (CFS).”

Lisa writes a lovely blog, full of detail, emotion and tales of a survivor.

I was feeling energetic and alive. My brain fog was noticeably less and it felt like just out of the corner of my eye I kept catching glances of what it would be like to have no fog at all. That little glimpse you catch of something that is mythical and mysterious but no matter how quick you are to turn and look you always just missed it. But I knew it was there and almost tangible.

Lisa and her partner Jeremy are living in a tent in the foothills of Washington state. They are living in the tent through winter and several of her blog posts describe the harrowing experience of cold and freezing temps (while battling CFS and MCS). They are currently building a straw bale house.

~~~

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