October 2011-- During the next six months, The Canary Report will be dedicated solely to me sharing my experiences while on the Gupta Amygdala Retraining program for MCS. If you'd like to be notified by email when blog entries are made, please subscribe in the right hand column below. During the entire six months, this blog will remain online but Our Canary Report network and forum will be offline and inaccessible to our members. Thank you for all your support! Aloha, Susie
 

The online exhibit, which also will be shown at the ME and Fibromyalgia International Conference in Ireland this October, is designed to raise awareness about the hidden suffering caused by severe Myalgic Encephalopathy and Multiple Chemical Sensitivity.

Eva Caballé

Greg Crowhurst, a nurse in Ireland who runs Stonebird, a blog about Myalgic Encephalopathy, announces the launch of Stonebird’s online 2011 Autumn Art Exhibition designed to raise awareness of the hidden suffering of severe ME and Multiple Chemical Sensitivity. The exhibit features works by Crowhurst and his wife Linda, and also Eva Caballé, who blogs at No Fun and is a contributor at the Canary Report. She also is the author of the book Missing: A life broken by Multiple Chemical Sensitivity. 

A sampling of Eva’s contributions to Stonebird’s art exhibit:

Metamorphosis inside MCS

By Eva Caballé

During our lives we suffer several metamorphoses, some are painful, others are positive, chosen or not. The experience, the life itself, makes us change and evolve. My story is not different, although my most radical metamorphosis was when I fell ill with Multiple Chemical Sensitivity. And surprisingly, when I thought that my life couldn’t be more foreseeable and monotonous, from the prison that my house has become, another metamorphosis started, this time deeper and visceral. This time my metamorphosis was chosen.

The need to communicate, to let the world know that I’m still alive, to cry out for my own rights and the rights of millions of people who suffer MCS in the whole world, led me to write. The extremely reserved person that I used to be has disappeared, in order to be able to tell my story to the world, as I dig into the deepest places of my being. It’s my metamorphosis inside the metamorphosis of living with MCS.

The exhibit also will be on display at the ME and Fibromyalgia International Conference in Ireland on Oct 9th, 2011, hosted by the Academy of Nutritional Medicine (AONM) and the Midlands Fibromyalgia Group.

Eva Caballé is an economist from Barcelona, Spain, author of the book Desaparecida: Una vida rota por la Sensibilidad Química Múltiple (Missing: A life broken by Multiple Chemical Sensitivity) published in Spanish by El Viejo Topo, Barcelona, Spain, 2009. She authors NO FUN, a Spanish blog with an English section about Multiple Chemical Sensitivity, Chronic Fatigue Syndrome and Fibromyalgia, with information and advice for people who are sick or who want to live a healthier life free of toxics. She is a regular contributor at The Canary Report and at the art magazine Delirio (Delirium).

 

The photographer Thilde Jensen examines people with Multiple Chemical Sensitivity.

The New York Times publishes Thilde Jensen’s photo essay on Multiple Chemical Sensitivity entitled Canaries. I wept to see such suffering.

Thilde Jensen in her video about her recovery from MCS.

Jensen herself suffered from MCS and Electromagnetic Sensitivity for years and recently completed a neural retraining program, which Jensen says has led to her recovery. On the last slide of the photo essay, she says:

Through a recent experimental neural retraining based on advances in stroke rehabilitation, I am again able to function in the “real world” without a respirator. I have often wished and prayed that I would one day be able to tell this story with the knowledge of an insider but without the restriction of illness. I am now at that point.

Here’s her video about the therapy and her recovery:

I’m really happy to share this story because Jensen’s work is affecting change on two fronts. One, the photo essay in the New York Times is bringing our plight to a lot of people who might not otherwise know about Multiple Chemical Sensitivity (or may have preconceived ideas or misunderstandings about the illness), and two, Jensen’s story of recovery through an experimental neural therapy is an inspiration to everyone with MCS. Brava, Thilde! ~Susie

Sep 132011
 

With Multiple Chemical Sensitivity, the here and now is all that matters and the fear of the fear is simply ridiculous against the real problems that force you to push on tirelessly, to carry on and just survive.

By contributor Eva Caballé, Spain.

"No Fear of Fear," published in Spanish in the online magazine Delirio. Photo by David Palma.

No Fear of Fear

Eva Caballé

Fear is a very useful coercive intimidating tool to silence and control people. A silent threat subtly reminds you that you can lose what you have. Do not complain, do not make any noise, because this might make your life even worse and turn it into a nightmare. They frighten the masses so that they don’t dare to revolt. They censor and distort reality.

But fear is a double-edged sword when used on people who have little to lose. When your day consists on struggling to survive, when you live in a parallel reality that no one around you can even imagine, you lose the fear of this abstract fear that they want to instill in you.

The harsh and heartbreaking reality prevails. The conditional and future tenses disappear against a present that overwhelms and leaves no room for anything else. The here and now is all that matters and the fear of the fear is simply ridiculous against the real problems that force you to push on tirelessly, to carry on and just survive. When every day is a real battle that tests your physical and mental strength, the fear of fear is nothing more than a fallacy, a ridiculous threat compared to the undeniable obstacles of the underworld in which you have been doomed to live.

Sometimes you dare to lean out the window, in a risky game to see how the supposedly fortunate people live, and you are impressed to see that they are paralyzed by an unreal fear that keeps them lethargic and living without feeling. It’s almost tragic to see how they tiptoe through their lives, afraid, anesthetized and controlled, and without even being aware of it.

Those of us who live extreme situations every day, such as those of us affected by Multiple Chemical Sensitivity; those of us who have been relegated overnight to being second class citizens without rights but still with all the responsibilities; those of us who have become nomads because a poisoned and dying world steals our health, our life, our dreams… we are not afraid of fear, because there is no room for cowardice when you face a reality that exceeds any fear that they want to instill in us to intimidate us, to dominate us and simply to destroy us. What we feared has come true. We have nothing left to fear anymore.

Link to the original article in Spanish

Link to download Delirio El Miedo

~~~

Eva Caballé is an economist from Barcelona, Spain, author of the book Desaparecida: Una vida rota por la Sensibilidad Química Múltiple (Missing: A life broken by Multiple Chemical Sensitivity) published in Spanish by El Viejo Topo, Barcelona, Spain, 2009. She authors NO FUN, a Spanish blog with an English section about Multiple Chemical Sensitivity, Chronic Fatigue Syndrome and Fibromyalgia, with information and advice for people who are sick or who want to live a healthier life free of toxics. She is a regular contributor at The Canary Report and at the art magazine Delirio (Delirium).

Jul 042011
 

On this day when the United States goes mad with polluting the air with toxic fireworks, may the lark (and all canaries) have clear air.

The Lark in the Clear Air

Cara Dillon

Cara Dillon

Cara Dillon singing with the Ulster Orchestra

Dear thoughts are in my mind
And my soul lets soar enchanted,
As I hear the sweet lark sing
In the clear air of the day.
For a tender beaming smile
To my hope has been granted,
And tomorrow he shall hear
All my fond heart longs to say.

I will tell him all my love,
All my soul’s pure adoration,
And I know he will hear my voice
And he will not answer me nay.
It’s this that gives my soul
All its joyous elation,
As I hear the sweet lark sing
In the clear air of the day.

 

This is my contribution about the cinema published in the magazine Delirio. The script about toxics and Multiple Chemical Sensitivity is entitled Rear Window and it’s a tribute to the great filmmaker Alfred Hitchcock.

By contributor Eva Caballé, Spain.

Rear Window by Eva Caballé.

Rear Window by Eva Caballé.

 

Now out is number 8 of the digital culture magazine Delirio, which is dedicated to The Movies. I had the pleasure to collaborate again in this wonderful magazine and the article I wrote for this edition is titled “Rear Window,” which focuses on the toxic and multiple chemical sensitivity and as usual it is accompanied by a photo taken by David. You can find it on pages 38 and 39 of Delirio – Movies. I recommend you do not miss this issue of Delirio because it is quite impressive.

I want to congratulate everyone who made ​​this new issue of Delirio and especially to thank Aida G. Corrales and Oscar Varona for their solidarity and for being with us despite the distance.

Translated from Spanish to English:

~~~

Rear window

By Eva Caballé

The room is almost empty; nothing but a bed and an old bedside table without any decor or curtain, all in light colors. It seems calm and quiet. The woman sits on the edge of the bed in front of the window, looking at the sunlight, which is orange because of the sunset. She has a quick look out the window and then observes more carefully stretching her neck as if she is looking for something. She turns and talks to the young woman who has just entered the room with an ironic and concerned smile.

- Woman: Don’t you see how everybody is disappearing? It is no coincidence! They started to spray the park, day after day, while children were playing and parents and grandparents sat in the sun and chatting while watching them.

The young woman puts her hand to her waist with a tired look and responds, gesturing with her other hand, while she snorts implying that she is tired of talking always about the same thing.

- Young woman: You only see conspiracies, for you all is very simple. How can you be so sure if you hardly leave home? When you live through your window! Instead of spending hours writing pamphlets that I’m sure that nobody reads, and taking pictures, shouldn’t you focus on your next book?

The woman’s expression becomes serious and she turns angry replying with some indignation.

- Woman: But it’s obvious! It doesn’t take Sherlock Holmes! The dog of the first floor neighbors died a few days after the first fumigation. They say that he was intoxicated by something that he ate… A few days ago an ambulance took the old woman who lives upstairs in the middle of the night and she is still hospitalized, when in the 40 years I have lived here I had never seen her having a cold! And what about the children’s of the fourth floor? (She takes a break to breathe because she speaks so fast that she is even short of breath.) Every day I see them with the bronchodilator and every other minute in the ER! Their neighbor has cancer and since she’s having chemotherapy she can no longer tolerate perfumes and now she has to wear a mask when she walks along the street. (Now almost shouting.) They say that she has Multiple Chemical Sensitivity (MCS) and doctors don’t pay attention to her!

The woman makes faces parodying the young woman’s lecture that she already expects and knows by heart.

- Young woman: You are a bit alarmist! There are only a few people who suffer MCS, there is no need to worry. And today almost everyone has allergies or asthma and authorities warn us that one of each four people will have cancer throughout our lives. (Goes back and speaks from the doorway leaning on the door frame.) This is the modern life. We have to die of something!

The woman turns and answers indignant from the bed.

- Woman: And does it seem normal to you? Really? And when this affects you, will you still think the same?

The young woman finally leaves the room and her voice is heard from the hallway with a tone between weary and sarcastic.

- Young woman: Well, see you next week. Do not keep on spying on your neighbors because you will end up crazy. You should amuse yourself and don’t fantasize anymore.

The woman answers raising her voice while the young woman closes the front door and leaves the house.

- Woman: Don’t worry, my attitude has no solution. (And finishes angry talking to herself.) And neither does your stupidity.

The woman is still staring out the window with indignation and with a worried face and thinks aloud.

- Woman: Does anyone realize? I see everything so clearly that it scares me. Makes me want to open the window and shout it from the rooftops, but will anyone hear me? Why don’t they listen even when you alert them? (With a sarcastic tone.) Having no time and the fast pace of life sound like cheap excuses to me. (She stands up and gets closer to the window.) It’s simple. We’ve become worse than donkeys, because it is not even necessary that they put blinders on us to not look beyond the established road. We no longer have the instinct to do it! We are afraid of what we might see lest we have to react. (The sun has set and she begins to close the blind.) It must be that I have no fear of looking or I have nothing to lose. It must be that my window is different…

Rear Window by Eva Caballé as it appears in Delirio.

Rear Window by Eva Caballé as it appears in Delirio.

~~~

Eva Caballé is the author of the book Desaparecida: Una vida rota por la sensibilidad química múltiple (Missing: A life broken by Multiple Chemical Sensitivities) published by El Viejo Topo, Barcelona, Spain, 2009.  She blogs at NO FUN. Read more about Eva’s book in an interview, link here. And read more about Eva’s previous essays in Delirio, link here.

The above post was originally published at NO FUN.

 

We are a lot of people living with Multiple Chemical Sensitivity and nobody will silence us!

By contributor Eva Caballé, Spain.

MCS Uncovered

"Multiple Chemical Sensitivity Uncovered" is a collage of people with MCS from around the world. We will not be silenced! (Click on image for larger view.) ©2011 NO FUN

Last year, Lola Vicente, a Spanish woman with Multiple Chemical Sensitivity, shared an inspiring photo of herself on Facebook. When I saw her picture I had the idea to make a collage with pictures of people from around the world with MCS.  I thought it would be a great visual  to show the general public, most of whom do not know anything about MCS; we are a lot of people living with this illness and nobody will silence us.

I have named the project “Multiple Chemical Sensitivity Uncovered.”

THANKS TO:

Àngels – España

Bodil – Denmark

Carol – Canada

Consuelo – España

Cristo – España

Div – New Zealand

Donatella – Italy

Ellen – Germany / USA (R.I.P.)

Ernesto – España

Eva – España

Gènia – España

Inma – España

Isa – España

Jacqueline – Alaska (USA)

japan92254 – Tennessee (USA)

Josetxo – Euskalherria

Judith- España

Loli – España

Mª Carmen – España

Mari Valmegat – España

Maria – España

María – España

Maria – Germany

Maria & Loli – España

Marilyn – España

Mona – Germany

Monique – Netherlands

Noemi – España

Paqui – España

Raquel – España

Rosa – España

Ryozo – Japan

Silvia – Germany

Silvia – Germany / España

SteelCity Canary – Canada

Susana – España

Susie – Hawaii (USA)

Winnie – Denmark

NOTE: The collage can be posted in any blog or website that wants to post it.

~~~

Eva

Eva

Eva Caballé is the author of the book Desaparecida: Una vida rota por la sensibilidad química múltiple (Missing: A life broken by Multiple Chemical Sensitivities) published by El Viejo Topo, Barcelona, Spain, 2009.  She blogs at NO FUN. Read more about Eva’s book in an interview, link here. And read more about Eva’s previous essays in Delirio, link here.

The above post was originally published at NO FUN.

 

The photos should tell a personal story about having Multiple Chemical Sensitivity: a struggle or victory, feelings of danger or safety, isolation or connection, defiance or resolve, issues at work or home, or whatever the contestant wishes to convey about his or her story, in the nude.

Woman running free on the beach, arms in air, with a dog running alongside.

Beck and friend (Australia) in 2010 calendar

 

UPDATE: The Calendar project is no longer a contest. It was proving problematic for people thinking they would be judged for their entries. All entries are welcome. You can email your entries to me at susie [at] thecanaryreport.org. Or you can write me with questions through the above Contact page. The following post has been edited to reflect the changes in the project. Thanks, Susie

The Canary Report annual calendar project is a collaborative project to show the life of people with Multiple Chemical Sensitivity through artistic, symbolic and expressive photographs taken in the nude. The calendar is entitled “The Naked Truth about Multiple Chemical Sensitivity.”

Woman standing with rainbow flag and sign reading "Pesticide-free Zone."

Mokihana (USA) in 2010 calendar

The 2010 calendar was a great success, and all profits went to The Environmental Working Group. Thank you to everyone for your support!

There are a couple of changes for the 2011 calendar:

1) Both men and women are welcome to participate!

2) All profits from the sale of the 2011 calendar will go directly to The Canary Report to cover expenses to run the blog and online social network. [NOTE: This was changed! All profits from sales of the 2011 calendar go to the Environmental Working Group.]

Guidelines for Submissions

Woman holding mask to her chest.

Ana (Spain) in 2010 calendar

Participants must have Multiple Chemical Sensitivity or toxic chemical sensitivities (self diagnosis is fine) and must be 18 years of age or older. By sending in photos, participants confirm that they meet those criteria.

Photo submissions should be discreet, just as long as the viewer is left with at least the illusion that the person in the photo is nude. Contestants may hide or reveal as much as deemed proper by the contestant, but photos of full frontal nudity are discouraged. Contestants may camouflage their identity by posture or props.

Woman squating under desk, as if desk is a bomb shelter, with yellow hard hat.

Katrina (USA) in 2010 calendar

The photos should tell a personal story about having MCS: a struggle or victory, feelings of danger or safety, isolation or connection, defiance or resolve, issues at work or home, or whatever the contestant wishes to convey about his or her story. 

Participants are encouraged to take time composing the setting and message, and to think of it as a work of art that tells a story. A tip: keep it simple!

If possible, something canary yellow should be somewhere in the photo. Not having something yellow will not mean disqualification from the project.

How to Submit Photos for the Contest

Linda at window, back to camera with her hands behind her back as if stuck on a chair.

Linda (Canada) in 2010 calendar

Send your entries to Susie directly: susie (at) thecanaryreport.org.

Contact

For more information email Susie through the Contact page.

Sep 302010
 

And in the ignorance that surrounds us, the seven capital sins are more relevant than ever, in these times when there seems to be a theory for just about everything. In these times of the decaying Welfare State.

By contributor Eva Caballé, Spain.

This is my contribution about the seven deadly sins published in the magazine Delirio. This article about Multiple Chemical Sensitivity is translated into English by Clara Valverde. I hope that it can be published soon at Delirio as an English annex, but I am posting this original photo and text here at The Canary Report so you don’t have to wait. ~Eva

Photo of the magazine page in Delirio of Eva's article. Includes a photo of Eva, black hair, with her hands covering her mouth area.

Sin Máscara (Without a Mask) as originally published at Delirio online magazine. Click on photo to view full size.

 

Without a Mask

Photo of Eva, black hair, leaning on her arm.

And in this decaying world, the worst is to be spineless and to have no personality. It is a world full of people who complain and who live grey and empty existences. People who do not have the courage to resist, to have their own thoughts and get dragged by the crowd. It is hard to live in this herd if you are not like them, if you know what you think, if you are not scared to say what you think, and if you do not care about not being accepted by others. Then you don’t fit in, you are different, you are radical.

But an ill person cannot be like that. You have to be well-behaved, let yourself be brain-washed and follow the established road wearing a mask without thinking. If you have Multiple Chemical Sensitivity, an illness that is not recognized, you fight to survive. But don’t make too much noise and just follow others. Don’t think, don’t do. You are sick. Behave as such. You have to be obedient and ask for permission so that you will not be thrown out of the herd, a herd for which others kill themselves to be a part.

And in the ignorance that surrounds us, the seven capital sins are more relevant than ever, in these times when there seems to be a theory for just about everything. In these times of the decaying Welfare State.

With the senses numbed, SEX becomes another frustration in an empty life in which to drag yourself day after day without stopping to think.

It is a life with the frustration that becomes an unsatisfied HUNGER. Eat until you burst. That anxiety which impedes one from reacting and keeps one squashed under a mountain of human feed. The perverted pleasure in an overfed society.

An emptiness that invades us and a growing hate which turns into anger against all that does not suit us under childish and ridiculous excuses. INTOLERANCE becomes violence against those who are not like us, perhaps because those who think scare us.

Without being conscious of our lives, the days go by while we look at our pockets to see if we are better than others. We COMPETE in a silly race to show our success. We pretend we are happy. Inside, we are empty.

Life is a parenthesis of fear and of superficial comfort waiting for things to change WITHOUT MAKING AN EFFORT, sucked in by a system that wants us not to think.

We are dragged by laziness. We hate those who we think are better than us. They remind us of our not wanting to make an effort. We waste our lives wishing that they would stumble while we CRITICIZE their successes and, without knowing it, we wish they were as mediocre as us.

A cheap plastic beauty poisons us, one that makes us feel better for a moment in which we think we are better than others. A toxic beauty for which we don’t care about the price we pay in a world where real health is not valued. Enormous fake PRIDE, the arrogance caused by ignorance. Who wants to be healthy if one can seem beautiful even if being stupid? Who does not want to seem better than others?

Does anyone dare to live without a mask?

~~~

Eva Caballé is the author of the recently published book in Spanish Desaparecida: Una vida rota por la sensibilidad química múltiple (Missing: A life broken by Multiple Chemical Sensitivities) published by El Viejo Topo, Barcelona, Spain, 2009.  She blogs at NO FUN. Read more about Eva’s book in an interview, link here. And read more about Eva’s previous essays in Delirio, link here.

Yellow Bird

 Posted by Susie
Aug 272010
 

“Yellow bird in the mine, I gave you my word you’d be fine.”

A sad but hopeful music video that speaks volumes to us canaries. It’s a very lucky canary who has someone in their life to pick them up out of the mine, wash them off, and fill their heart with love. xoxo

Music video animation by Kristine Thune, to the song “Yellow Bird” by Bess Rogers from her album, Travel Back EP.

Thanks, Julia!

 

Call for photos for project entitled “Multiple Chemical Sensitivity Uncovered.”

By contributor Eva Caballé, Spain.

Loli Vicente, a Spanish woman with Multiple Chemical Sensitivity, whose photo has inspired the collage project “Multiple Chemical Sensitivity Uncovered." ©2010 Loli Vicente. Photo used with permission.

 

Last month, Loli Vicente, a Spanish woman with Multiple Chemical Sensitivity, shared an inspiring photo on Facebook. When I saw her picture (above), I had the idea to make a collage with pictures of people with MCS to post on NO FUN, because lately my blog is having a lot of visits (more than 3,000 the day that I was interviewed at national radio RNE or the day that MCS was featured on popular TV show in Spain) and many of the readers aren’t people with MCS. I thought that it would be a great opportunity to show to the society that there are a lot of people living with MCS and nobody will manage to silence us. I proposed this idea on Facebook and it was well received.

I have named the project “Multiple Chemical Sensitivity Uncovered.” NO FUN, my window to the outside world, shows people with MCS from all around the world, so we can illustrate that there are a lot of people living with MCS.

If you suffer MCS and you want to join this project, you can send your photo (with your country and your name or pseudonym), before September 30, to this email account: fotos.sqm@hotmail.es (this account has been created exclusively for receiving the pictures and it will be closed once the project ends). The photos can be you with a mask or without a mask but where MCS can be identified. More than photographic quality, I’m looking for the visual impact of all the pictures together.

I hope you like the project and will join it!

NOTE: I’m open to sharing the collage with any other blog or website from all around the world that wants to post it.

Link to request of photos in Spanish.

P.S. I would like to take this opportunity to tell you that, as some of you know, I have recently closed my personal Facebook account so that I can focus on my health. You can still stay in touch with me through my blog NO FUN and my two Facebook pages: for my blog and for my book.

Come visit me at NO FUN. English section here.

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