October 2011-- During the next six months, The Canary Report will be dedicated solely to me sharing my experiences while on the Gupta Amygdala Retraining program for MCS. If you'd like to be notified by email when blog entries are made, please subscribe in the right hand column below. During the entire six months, this blog will remain online but Our Canary Report network and forum will be offline and inaccessible to our members. Thank you for all your support! Aloha, Susie
 

What should be included in a letter to a physician that arrives before WE do?

Elaine Willis, who has Multiple Chemical Sensitivity and a host of other illnesses, contacted me for help in composing an advance letter for her health care specialists. She’d love to have input from as many people with MCS as possible. Please leave your thoughts in the comment section.

My family doctor (primary care physician) has asked that I prepare the letter that will go to specialists prior to my first arrival. It needs to elucidate in few words what to do to make my visit safe. It must also explain MCS (Multiple Chemical Sensitivity) to a physician who may have had no education about or exposure to a patient with the kind of symptoms I experience. My symptoms can be mild (for me) which may include coughing, asthma, brain fog and increased ataxia (you see I already I have ataxia – the hereditary kind). Or, they can be medium, slurred speech, severe ataxia, altered blood pressure, complete inability to focus or answer questions, stuttering, poor word-finding skills and dizziness. And of course, the biggie… anaphylaxis… and it happens too often.

So, my desire with this post is to engage the assistance of others with MCS. What should be included in a letter to a physician that arrives before WE do? First appointment of the day? No waiting? This is a brainstorm – so all ideas are accepted. I will choose the ones I want for my letter and post it. Maybe it will be useful for others, too!

Please leave your suggestions here in the comment section. Thank you!

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Read more about Elaine here:

Perfume blogger dismisses concerns from a member of our community

Canadian teacher fights for her right to workplace accommodations

Meet Elaine Willis

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This post was originally published on Elaine’s blog and republished here on The Canary Report with her permission.

If you enjoyed this post, you might like these related stories:

  1. Dear President-Elect Obama: Health care is a right
  2. Poster for fragrance-free hospital care
  3. Letter to neighbors about toxic fumes
  4. Tell Obama about your health care needs
  5. Meet Elaine Willis: Walking the talk

   
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