German health system threatens to fail again for another MCS case

Posted on Dec 10, 2009 by Susie Collins in Blog, MCS, Susie Collins

Even though Germany recognizes Multiple Chemical Sensitivity and has coded it for doctors billing with T78.4 in the ICD-10GM, there is another emergency case who cannot find adequate help.

I just received this urgent message from my friend Silvia Mueller at Chemical Sensitivity Network about a woman in Germany with Multiple Chemical Sensitivity who is in dire need of help:

44 year old Geli H. from Essen (Ruhr region) suffers from severe MCS. Since weeks she and her husband are desperately seeking for medical aid. He was allowed to take off to care for his wife. Geli’s food intolerance left her one food, everything else causes a dangerous shut of her throat. She’s hit by vertigo, choking fit, heavy headache, gastric spasms. Inside her mouth it looks like raw flesh. Even if she ate a tiny little bit, all her body may turn red and she gets no air. An air purifier runs all day and night. After some few sips of water, she collapses. Without competent help, she faces death. Because of her reactions to chemicals, she should not leave the house. In her despair she tried to get help in a local clinic. At the entrance she got already exposed to disinfectants fumes, perfumes, scents from inside and cigarette smoke from patients smoking at the entry. Heavy reactions of her body urged her husband to bring her back home.

They asked several clinics all over Germany. The last spark of hope, a near by anthroposophic clinic in Witten-Herdecke, was fully booked. Other declared not to be in charge for such cases. Doctors didn’t make it better. One environmental medicine doctor told, he cannot help because there is no environmental clinic near to her. Another recommended a hotline in Berlin that works only twice a week. There seems to be no need for emergency help in Germany.

One doctor topped it all with the well known psychosomatic theory of MCS. He recommended a university hospital. Geli has pathological blood results and immune system is down and this doctor recommends psychotherapy where she has to get used to substances which ruined her body. Is there no way to sue such doctors?

Geli is in grave danger. She even might not survive a flight to Environmental Health Center in Dallas. She quickly needs a special hypoallergenic nutritional infusions. It only takes a doctor with a approbation for environmental medicine for diagnosis. A willing general practitioner could apply the IV’s at her home.

If you read this in the UK, please remember Sophia who died in 2005 in a mental hospital because doctors refused to accept the organic nature of ME/CFS. Is that the cure for all environmentally diseased cases?

Sophie’s story on YouTube:

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Tags: MCS, Multiple Chemical Sensitivity, Support

6 Responses to “German health system threatens to fail again for another MCS case”

Sandra DenBraber, R.N.

11. Dec, 2009

years ago when I worked in the hospital envirnmental unit and a patient did not tolerate IV therapy or could not afford it we taught them to do rectal drips with important vitamins.

you can use a enema bag and put in the disolved vitamins in a small amount of water and slowly instill rectally. Some had IV tubing connected to the enema bag and inserted that in the rectum so they could control the drip better. (cut off tip of IV tubing before using)

I hope this might help the lady in Germany you are trying to find help for.

let me know if I can give more information

Sandy DenBraber, R.N.

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Bob Payne

12. Dec, 2009

I also have the digestive form of MCS.
I may be able to help with diet and drug recomendations that have worked for me. I am on a VERY restrictive diet. Pork is the ONLY kind of meat I can tollerate, perhaps because pig DNA is the closest to human?
I have to check EVERYTHING I eat, including the list of ALL of the ingredients: Pork is the only meat I can eat, NO gluten, no oils other than corn oil, no eggs, no artifical sweeteners, no trans fats, no hydrigenated or partially hydrogenated anything in the ingredients, no antibiotics, no growth hormones (like get into milk from treating cows with rBGH) in the ingredients.

Drugs: Kapidex 60mg or Prilosec, and Singulair 10mg help me. Steriods may help, I gulped (swallowed instead of inhaled) a QVar allergy inhaler. If anyone can get me in touch with these people… I may be able to help… I’m in several of the MCS and Chemical Sensitivity groups on facebook.
When she is well enough to have it, she should have a pan-endoscopy with biopsy for Eosonophillic Enteritis with a count for an elevated level of eosonophiles in the tissue.
bob payne

Reply to this comment
Susie Collins

12. Dec, 2009

Aloha Sandra and Bob, thank you for your very kind responses. I have forwarded them to Silvia.

Reply to this comment
Jon Neiss

15. Dec, 2009

what a horrible situation! I hope she finds some help.

As far as the German health care system goes, I think most country’s health care system has great flaws. I am hoping that Germany is slowing moving in the right direction. The recognition of MCS would seem to be one step in that movement.

One thing I can offer is that there are therapies that require no money and that one can do on one’s own, if nothing else is available. Of course, I think it would be best to be under the direct guidance of a professional, but if that is not possible, there are a few things that one can do, on one’s own, right away. Those would include meditations on healing, relaxation techniques…and, if one is able, shiatsu, Qi-Gong and various other healing techniques. And yes, it is also always best to use those techniques under the guidance of a professional.

Here are some links:

Meditation:

http://1stholistic.com/Meditation/hol_meditation.htm

http://www.freemeditations.com

Qi-gong:

http://www.qigonginstitute.org/main_page/main_page.php

Shiatsu:

http://www.holisticonline.com/Shiatsu/hol_shiatsu_home.htm

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Denise

17. Dec, 2009

This left me in tears and outrage! There must be a celebrity with this illness that can speak out on Oprah or somewhere that gets lots of media traffic for us.
Things must change so the death toll is stopped!

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Connie Rae

18. Dec, 2009

To think that the problem is global and still continuing horrifies me. I was told several times I was not well enough to be treated. I wandered from place to place seeking a solution…sometimes with family help, but mostly with God. I thought many times I would die. The Sherri Rogers book EI syndrome was underlined and carried with me so I could communicate when I couldn’t speak. that was 15 years ago. The information is so much better with internet and good doctors and wellness professionals all around, but there are still so many homeless, without the proper food and clothes not to mention health care. We have alot of work to do…it touches my heart that so many kind people are willing to share their solutions to a life and death dilemma.
My prayers and hopes are with these people…and our governments, medical societies, churches and society in general to change and give us help!

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